SAUNDERS GANG

She is so proud!

2012-02-02T11:19:00.000-05:00

Carley is reading a "Biscuit" book and is very proud of herself. (I'm pretty proud of her too). She has had a desire to read for a long time and unfortunately lost a little confidence in her ability. When she was in school they pushed phonics a lot which ended up hindering her reading as she began sounding out every letter instead of actually reading the word. She became so frustrated and disappointed that she wasn't reading like everyone else. It was heart breaking to watch the sad look on her face and her avoidance of books that she had always loved and enjoyed.
Once I pulled her from public school I stopped all phonics and took the whole language approach. For a couple of weeks I used flash cards with all the words specific to one "Dick and Jane" story. One day I handed her the book and asked her to read me a story. Poor girl had the worst look on her face and then stated to me..."MOM, I can't read!" I told her that she should give it a try and I would help her if she needed it. She said. "OH, ALRIGHT!" She began reading the "Dick and Jane book and after two pages looked up at me with surprise and excitement stating, "I CAN READ!!" "I am so happy!" I was thrilled and relieved that doing this gave her back her confidence and desire to learn to read! She now has a pretty good base of words and I have brought phonics in to play again (mostly blends) and so far she is still reading!

While Carley is reading I do cover up the pictures as sometimes they distract her and to make sure that she reads the actual words in front of her instead of getting the clues from the picture. A couple of times she gets in a rhythm of the story and she goes back to double check the words she read. :-)

Because a couple of someones with Down Syndrome love me.............

2012-01-14T22:50:00.002-05:00

I have had people say to me, “It takes someone special to raise a child with SN,” or “I have earned my place in heaven for rescuing and adopting Macey.” I have even heard, “Wow you must be an angel to raise two special needs children and/or starting a support group.” etc..etc…

While I would love to relish in the compliments and take credit for being all that and a bag of potato chips too……..The reality and humble truth of the matter is that I am not special in any way. But because of them I want to be a better person. Plus I’m pretty sure they have been teaching me more than I have been teaching them.

You see before they came along I was probably more self-centered, striving to get ahead, you know getting to that

perfect "status quo," lusting after material items in order to be happy. I probably even had too much vanity and pride. Yes people it is true I'm not special just merely human in all of its worldly ugliness.

So far the girls have taught me what I’d once perceived to be important in life wasn’t that important. They taught me how to appreciate the smaller things in life and how much more rewarding and important they were. They taught me about simple joys and laughter and even that it is okay not to be perfect according to the world. They continue to teach me what unconditional love and forgiveness really means! I say it this way because I still struggle to apply the unconditional love and forgiveness in every situation like I should. Remind me to share the lesson taught to me not so long ago about a little girl and her scooter. There have been times when I have gotten the opportunity to see something through their eyes that puts me in complete awe of the view. I will admit the lessons aren’t always pretty, some have been humbling, some even heart breaking while others have filled me with unexplainable joy and excitement.

Several years ago my life suddenly took a different path because of that path I am slowly growing into a better person. (I hope) If time was turned back and I given the chance to pick a different path I would still choose to follow these girls down this same path but I might try to avoid a few stumbling stones that were unavoidable! J Don’t get me wrong I still have feelings of being incapable, unworthy and wonder how in the world did I land this gig. But I take a little comfort in something I learned in a couple of my bible studies of late….. God doesn’t pick the most capable, willing or highest of men to serve. He chooses those who are unlikely, unwanted, unwilling at first and even a little less worthy who learn and become good servants in his eyes. Unfortunately the exact scriptures escape me but the meaning pointed out during these studies stick with me.

My life isn't always joyful, easy or pleasant and it can be exhausting. Thoughts of worry, fear and sadness can creep in unexpectedly but when I pause to push those things away I am quickly filled with The joy of my girls, how they make me proud, laugh and smile. How they persevere in the hardest of tasks without giving up and often with a smile......... They make me a better person and for this I am not special I am blessed!

THESE ARE MY GIRLS AND I LOVE THIS PATH!

I look forward to following them as they grow!

We have been blessed in our travels meeting people and making new friends that we might otherwise not had the opportunity to meet! I can't wait to see where our path leads next and who we might meet along the way!

4 Years Ago Today!

2011-08-17T23:58:00.001-04:00

If you would have asked me years ago if I ever planned to leave the country my answer probably would have been, "No, I really don't have any desire to leave the country."(I didn't even own a passport!) If you would have asked me years ago if I would go to another country to adopt a child..... I probably would have looked at you as if you were a total loone!(Because there were lots of USA children!)

Now that just goes to show you that once can plan and have their own ideas in life but if it isn't your intended path God is going to make sure he puts plenty of people, speed bumps and curves along your road just to get your attention!  Isn't that right Donna, Shelly, Beth & Andrea @ Reeces Rainbow?   I am thankful that they stepped into my speeding lane to slow me down and point me in a different direction!

It is hard for me to believe that Macey has only been with us 4 years instead of her entire
life!  Looking back at the pictures from our first meeting and now it always surprises me how little she was and how much she has grown in those 4 short years.  We have been through a lot in our 4 short years togehter......and if given another chance in picking which lane I would take again.......I would drive full speed ahead right to the Neon Macey sign again and again!!

  Four years ago....

Today..........

Riding a butterfly!

Mommy's little butterfly girls...

Modeling one of our Jellyfish......

No daddy!!!...(note spoon in dads hand!)

She always changes her mind and gives him a hug and a bite!

HAPPY BIRTHDAY

HAPPY 4TH FOREVER

FAMILY ANNIVERSARY

Carley Saying Psalms 23

2011-03-29T21:03:00.003-04:00

If you get motion sickness you might not want to watch the following video!

Make an on-line slide show at www.OneTrueMedia.com

I admit that some things she inherited honestly!! ( like wiggling and fidgeting)

I wish I could claim the other ability of good memorization and recall!

She is also very excited about doing the church play and managed to memorize her solo part in two days! The funny thing is now she has managed to memorize everyone else's solo and all the words to every song!

(hope they have a mic they can turn off since I can't turn her off!)

Today Is World Down Syndrome Day

2011-03-21T21:34:00.001-04:00

We are all people on the same round ball living life one day at a time!

Connections Within The Rainbow & Other Friends Too!

2011-03-17T23:29:00.001-04:00

Today we had the pleasure of meeting the Urbans in person. I first learned about the Urban Family through Reece’s Rainbow and then began following their growing family in the blogging world. Our friends, Beth and Hannah came down and fixed us all a delicious lunch... Yum! She even brought us some her famous pumpkin muffins! (Carley’s Favorite) Okay so maybe me and Macey have a fondness for them too!

Time Warp…..

2011-02-22T23:17:00.002-05:00

Time travels by the speed of light and it seems to happen around here quite often!
We have been very busy and have had lots going on since the last post IN AUGUST!!! (yes I know bad).   But honest to goodness I have made many attempts to update this blog but time and energy seem to be a challenge as words and thoughts would fail me! But I am going to try and do better……
This blog has changed directions a couple of times and I often wonder if it would be better to start fresh with a different blog but then again why should this blog reflect differently than our always changing life.
Lets start with something simple…
Remember these free chairs off Craig’s list I posted about (here) ?

I eventually got around to painting them, a month or so later. I even found a fabric for the seat cushions a month or so after painting them….

And I even completely finished them just recently!

I didn’t want my garage to get too spacious so I decided I would redo a china closet…. (Maybe I should have china too?)
So after many ~~days~~ months of searching thrift stores and craig’s for the perfect china closet (by perfect I mean cheap). Because one would not feel free and easy about giving up or throwing an expensive one out if it turns out I’m not very good at transforming furniture!!
THE BEFORE…….

THE AFTER………

One day I might get a chance to finish the glass doors… Although door free is growing on me..….!
As for the dust and clutter that’s for enhancing purposes!
I bet you can’t guess what we are up to next!

Carrot Curiosity .....

2010-08-14T16:55:00.000-04:00

Early in the Spring when I started preparing the garden the little girls showed some interest and asked some questions and even helped a bit. One of the questions, What are we planting? I named off several things when Carley said, "Mom, what about carrots?" I'm sure this was triggered by our adventure to find Peter Rabbit in Mr. McGregor's garden cause the girl doesn't really eat carrots! Poor child just didn't realize that her mother is no Mr. McGregor or Farmer Brown! But I'm willing to give anything a try at least once! I even have to admit once we planted them I too was a bit intrigued and curios! I did draw the line when Carley suggested potatoes though.

I then asked Macey what she would like to plant and well she said PUMPKIN which we did! Later when Craig was over jumping on the trampoline with the girls he told me not to expect too much from our pumpkin patch this year but that if we leave the vines next year I would have pumpkins. This was backed up by a cute story about his mother's first year growing pumpkins... It went something like..... her vines only produced one small pumpkin and when she went on vacation Craig's uncle bought a big pumpkin and placed it in her pumpkin patch. His mother was so excited and talked about it for a few days when they finally told her the truth... (Me...I probably would have never told her the truth).

All summer long I have harassed him about Macey's pumpkin vines which has produced 3 pumpkins that are currently still growing! However the bugs have been such a challenge this year and I'm a bit worried that they are going to kill the pumpkin vines just as they have killed my squash and zuchinni!! :-(

Here are some pictures of settling our curiosity a bit by pulling a few carrots....

Carley

My garden is raised and those carrots where in the ground real good....

so she had to stand on the edge in order to pull them up.

Good thing Aunt Glenda was there cause once she yanked she almost lost her balance!

But she was got impressed with her carrot!

When Carley was done Macey said..... "My Turn"

So we placed her on the ledge of the garden and Aunt Glenda showed her where to pull.

Macey

She tried but ended up pulling off the stem a bit.

So Aunt Glenda reached down with her and helped her pull.....

And well we were not to sure about this carrot.

One of our favorite visitors!

2010-08-07T16:04:00.000-04:00

We had one of our favorite house guest staying with us this past week while her mother is off gallivanting the globe! You may even know them from Hannah Shenanigan’s. Okay so maybe Beth isn’t really gallivanting the globe but is visiting her eldest daughter who is serving with the peace corps in Jordan and visiting some of the surrounding areas! I hear they are having quite an adventure and the really good news is that they aren’t actually anywhere near the firing rockets!

Hannah has grown quite a bit since the last time I saw her so much so that I am now shorter than she is…story of my life!! My girls look up to Hannah and not just literally. Carley and Macey would spend every second of every day with her if they could. However she isn’t use to having two rambunctious munchkins around ALL THE TIME! I always try to make sure when Hannah comes that she has a hide away to retreat to when she has had enough of them!! I totally sympathize as I have been known to find my own hide-a-way from time to time! Hannah didn’t really retreat very much a matter of fact she was a great role model and very helpful! Hannah even managed to get Carley, who doesn’t really like to color, to do so for a long time and even got her to cover more than a small spot on the paper. (Go Hannah!) We also learned that Macey loves to color almost as much as Hannah.

And mom…..just in case you didn’t know it, your Bird is missing you a bit, so we tried to threw in a few distractions! We swam, colored, watched a movie, dressed up, attended some therapies, played detectives among other things! One night we went out to eat with our poker run friends and checked out all of Illusions Motorcycles! If you girl decides to be a Harley riding gal with a really cool, loud and fast motorcycle…..I had nothing to do with it……. HONEST! She did a great job with the girls this week and even helped me out!

We went bowling the morning before dad came and even though I use to bowl on a league had even had bumpers I am here to confess that your girl beat the socks off every single Saunders girl! That’s right with a fantastic score of 121! I meant to get a picture of all of us at the alley but we knew James was waiting back at the house. However I did get the bowling alley to print the score sheet so our reigning champion could take it home and brag!! ;-)

We are going to miss her and for those of you who are our friends on face book…..
I did return her without ransom… reluctantly!

Three In One!!

2010-07-27T00:31:00.002-04:00

You have probably seen postings on Facebook and blog land talking about the events in Orlando; So who am I to be any different?!

Yes we too were in Orlando… Home of Mickey, place of Magic and of course the NDSC Conference. I REALLY LOVE going to the national conference and seeing so many families and individuals with Down syndrome celebrating life! Plus it gives us the chance of not being the different family which is nice every now and again!

But the best part of it all was meeting a few families who have more than just that extra chromosome in common they have adoption and Reece’s Rainbow in common too!

Here are a couple of them but sure wish I would have thought to pull out my camera more! Luckily I had Rachel who got a few photos for me.

            The Andrews


My Macey and Macey D.
(who happens to be from Izmail too!)

We did get to meet a few of the Cornish Family members but sadly I did not get any pictures :-(

We even got to see an old friend who not only lived here in Virginia but was a roommate in Ukraine too. She has also adopted several children from RR!

Shelley

I do love going to workshops/conferences (yes I’m weird) But they do seem to inspire me and are sometimes very reassuring! :-)

But WOW this one was a whole lot of EXTRA FUN!

Motherhood..........A True Confession!

2010-05-24T22:00:00.001-04:00

Don't judge me!! (I do that just fine all by myself)

There are days where I throw my hands in the air and wonder...."what in the world was I thinking having children let alone 4 of them!" Don't get me wrong I love each and every ~~thorn in my side,~~ I mean child I have!! But really shouldn't there be rules and criteria before one should be allowed to reproduce? After all when I was in the process of adopting Macey I had to jump through all sorts of hoops in order to prove that I was indeed a fit and capable mother!! WHOOPS maybe someone slipped...........

No really just look at my eldest children they're going to need all sorts of therapy in order to become functioning, well adjusted individuals who will become an asset to their community! Don't even worry that one of them is in Iraq protecting our country because I'm sure all those other soldiers moms had it goin-on!!)

However I am sure if they were asked just the right questions they would let you know that I am all sorts of crazy and completely delusional!! They would tell you that my parenting skills are nothing to be desired that I only cook meals out of a box!! Then there are those things I never get done or get done but just aren't done right! I'm pretty sure Carley and Macey one day will pipe right up and agree with their older siblings once they get a little older and figure it out!

But sometimes being a mother and all that comes with it is not easy nor are many of the things you do popular!! But hey I'm not here to be there best friend or win a popularity contest!! All I can say is I try and hold true to my beliefs, morals, values and do what I feel is right and hopefully will be the best interest of my family! I can also tell you that the position of motherhood becomes far more difficult, a lot less enjoyable, will produce feelings of inadequacy and sadness if your children convince their father that you are indeed a raving, delusional crazy person... But mom's trust me when I say no matter what pray hard, hold your heads up high, stand your ground and hold-on the storm will inevitably pass and hopefully with very little damage!!!

A Perfect Ending To A Perfectly Busy Day!

2010-05-12T21:27:00.224-04:00

Today we FINALLY GOT OUR AIR CONDITIONER.....YEAH!!

So while the men were installing it.....Rachel and I started working on one of our many planned projects!

It is hard to believe that Rachel has already completed her first year of college, quite successfully too!

"Way To Go Rachel" She is now home for the summer but has registered to take two classes at our local community college(she would like to graduate early and move right into grad school sooner and it saves money!!)

WE ARE VERY PROUD OF HER!!

Next year she and several of her girl friends from school will be sharing a townhouse just off campus which is under construction at the moment by one of the roomies' father. She not only has the measurements for the room but has planned out her furniture and even decided on her rooms color scheme!! she gets her "Type A" tendencies from DAD! :-)

A couple of months back we were at Habitat for Humanity and she found a deal she couldn't pass up...... A bedroom set for $35(dresser, bed frame and a headboard with cubbies and shelves)

Yesterday while on one of our jaunts through thrift stores, she found a small, sturdy, very cute, rolling desk for $10..... Above she has started her project by taking it completely apart and sanding it down in hopes of painting it in the near future!!

MEANWHILE........

I found these five chairs off of Craig's list for FREE!!

I have removed the cushions and in the process of looking for a fabric that screams out ME....PICK ME!!

I was originally thinking I wanted to paint them black but since they are sanding down so well now I am thinking I might stain them? Unfortunately I didn't get to finish sanding them before the storms rolled in so I got plenty of time and sanding before I have to decide!! Maybe when that fabric calls out to me it will help make the decision!!

Thank goodness for the breeze it did a great job of blowing all that sanding dust away!

A BEAUTIFUL RAINBOW!!

LEFT SIDE

RIGHT SIDE

And the complete and beautiful rainbow!

Carley and Macey wanted to go and look for the treasure at the end!!

(Carley loved the March leprachaun theme)

I told them that we didn't need too cause they would be at the end of the rainbow and I already knew they were my treasure!! Carley giggled and said,"Ah Mom, I love you" and Macey gave me a big hug!

Macey's BAHA & Hearing update.

2010-05-10T13:30:00.001-04:00

A quick synopsis to bring you up-to-date on Macey's hearing:

* Macey received tubes within the first couple of months after coming home to the US with her forever
    family.

* Unfortunately they didn't last very long and we put in a second set and at this post-op appointment her
    the ENT thought that Macey might be a good candidate for the BAHA.   I started doing a little research
   into the BAHA and looking for families with the device to here their opinion. I did learn that they do not
    want to do the surgical procedure for the BAHA until they are five due to the type of surgery and maturity
    of bones etc...

* Again lost our tubes and we had to have a third set but this time we decided to also have a T&A
    too. UGH!! At this post-op appointment the doctor decided he wanted another hearing evaluation and
    down to the audiologist we went. Tubes really make a BIG DIFFERENCE! The Audiologist also did
    something I hadn't seen before but the equipment really reminded me of the things I had read about
    the BAHA. The Audiologist then also thought the BAHA would be a good for Macey!!

* So we did in fact test out a BAHA for a couple of weeks and MACEY LOVED IT!

Here is where it all takes an unexpected left turn!

Our regular ENT is good but I swear he is ADHD however he has always taken good care of Macey... Although he has done thousands of T&A's, tubes etc he has only done a handful of BAHA surgeries and I felt that I really wanted someone who had a lot of experience in this department after all we really only have one good ear to work with!! So we decided to have a consult with a doctor in the same practice that has had lots of experience with BAHA's and surgeries.

While waiting for the new doctor consult!

Mama......I'm over this! Of course this was after she dug a large wax ball out and waiting forever

She thought she heard the doc coming again!

Bottom line the doc was not on the same page as us and said she wanted more accurate and current hearing testing, along with a CT scan, another set of tubes in and then we would make a decision on where to go from there but she felt hearing aids might be better!! FRUSTRATION!

I then said, I understand tubes are a necessity no matter what decisions are made to keep the ears healthy and clearly the tubes enable Macey to hear. I also agreed that we should do the testing(after all I would need it if I had to go else where later). However I also explained that I had some major concerns and issues with not moving forward as fast as possible and they are:

* The tubes don't last and it takes at least 4 months to get another set along with the scar tissue that can be

caused by the tubes each time!

* She misses so much every time she losses her tubes, like the several vacations we took and all the

activities we are involved in on a daily basis.

* She regresses in many areas and becomes very frustrated along with her family and teachers. This time

she stopped talking completely!

* Hearing aids do not bypass fluid in the ears like a BAHA not to mention the BAHA is less noticeable and

more out of the way.

* I also feel that we should not waste anymore time as time is so valuable especially since we will be 6 soon

and it just isn't fair to her especially when I can clearly see the difference in her and her happiness with and

without hearing!

* Plus summer is coming and the surgery process and healing for the BAHA takes several months and we

want to be able to swim, play and go!!

Sure wish I had an easy button.........

I could veto the doc... have the surgery and healing process all done... and who knows what else I could accomplish with this magic little button!!

So the process began:

* They tried to schedule the tests at the same time as the tube surgery so she would only have to go under

anesthesia once but all the doctors schedules just wouldn't come together. So first up was the insertion

of Macey's 4th set of tubes only this time they are "T" tubes! The doctor did say Macey's tube insertion

was quite a challenge due to the humps in her canals and how much smaller they become close to the ear

drum! She also found out that Macey had major ear infections that she did not see in the office! Maybe

this will make her rethink the BAHA?!

* Two weeks later she had to be put under again for the ABR (hearing test) and CT scan But it was a good

thing since she had infection cause the test would have been inaccurate two weeks before! But I felt so

bad for her cause as soon as we pulled into the parking garage of CHKD Macey said, "Mama!! (some

sort of unhappy and worried sounding gibberish talk that I understood completely!!! So I said,

"Yes Macey, we have to go in there to get your hearing test." Poor girl just slumped put her hands over her

face and sighed. I felt so bad but reassured her it would be okay and over soon!!

* The tests came back with the same results as the first tests back in 2007 (so that is somewhat good

news). So during the post-op the doc said she would definitely like to give hearing aids a try before

making any decisions on the baha! FRUSTRATION!

I have also been thinking about the whole process, surgery, tests, etc plus their is the factor that the insurance company supposedly demands the testing of hearing aids first that makes one a little more cooperative during this process! But in all fairness I should let Macey try the hearing aids like she did the BAHA to see what her reaction is...... maybe she will like them just as much!? I will say there is a part of me that still believes that the BAHA would be a better fit, a little easier for all involved to deal with, less noticeable(due to the location) and we wouldn't have to worry about fluid hindering us and/or losing more time!

So far I am happy to report that Macey still has her tubes and is hearing well and is very happy along with her family and teachers. She is back to trying to talk again as well as signing! Her language is emerging by leaps and bounds and some of it very clear! She is back to trying and learning in all areas again which is GREAT!

Now we are in the month of May with summer right around the corner so honestly surgery for a BAHA right now would not be welcomed by any of us at this point!! But in the meantime the doctor pushed Macey up on the year long waiting list for speech (she must have an easy button) and now she receives speech and OT once a week at the children's hospital....YEAH!! Thursday we will be going to get fitted for our loaner hearing aids where Macey will have to tell them how she hears, how well they fit etc.......this should be interesting.....We will see what happens!!

Just look at her....how could one not want or do all they possibly could!!

Eggsiting Easter and Hoping to Survive Spring Break!

2010-04-07T00:09:00.000-04:00

As usual life has swooped in and taken over and you know me, I’m starting with the easiest post first…. EASTER!!

Carley and Macey both had Easter…I mean Spring parties at school where we ate entirely too much!
(I agree Macey 100%)

In Macey’s class we had lots of fun decorating eggs and hunting them!
Then I followed the jelly bean trail to Carley’s class for her party and again ate, UGH! We did a little decorating too only this time it was cute little bunny cupcakes and instead of hunting eggs....we searched for Peter Rabbit with our maps in Mr. McGregor’s Garden …... “Oh My”

WE FOUND PETER!!!! and luckily not Mr. McGregor!
We even found baby ducks…..(one was green)

What a great start to our Easter weekend! Sissy, or as Macey likes to call her, KeeKee came home too!
The weather was absolutely beautiful and we took full advantage of it every second we could. We even decorated our eggs OUTSIDE!! On Easter morning we had some time to spare after church so dad hid some eggs for a little egg hunting fun before our visit to Nana’s and the big egg hunt!

While at Nana’s our cousins were tons of fun and twirled us about!
Alyssa
Macey
Carley

And who didn’t want to be left out in this fun twirl about?
Our cousin's big brother………NICK!!

(The little girls are trying to figure these two out)

Hope you all had a wonderful and Blessed Easter!

World Down Syndrome Day

2010-03-21T22:48:00.000-04:00

3-21-10

On This Day.........

I made 21 trips up and down the stairs hauling furniture and books.

Me and my two companions sporting that little extra, made 21 trips to and from the truck hauling limbs and stuff.

I spent 21 hours peeling wall paper! “Oh My!”

We sang "Would You Like to Buy and O" at least 21 times throughout the day.

I am sure I answered 21 questions x 2 during bath time.

Now if only someone would allow me to sleep for 21 hours....PLEASE x 21!!

Oh and of course we took at least 21 breaks lasting 21 minutes!!

I love my life in the World of 21!!

Seems we ARE more ALIKE than different!

Now I have to get back to finishing the wall…

:-(

Today is "The Day".....

2010-03-03T14:13:00.002-05:00

‘TO SPREAD THE WORD TO END THE WORD”

What word? It is a word that degrades, belittles, dehumanizes and hurts; it is commonly used with little regard to the damage it causes. Some people throw the word around not realizing what they are doing while others know, but don’t care!!! This word is heard every where on TV, Radio, in your own community and even from family and friends!! “The Word” is RETARD….RETARDED commonly found in statements such as “How could they do that…. they are so RETARDED” OR “I cannot believe I made such a mistake…… I am such a RETARD"

Some people say we are being “over sensitive” and “just need to get over it”……”that it’s only a word, it means nothing”!! Well they aren’t entirely wrong……. they are just words but they carry a BIG PRICE !! They are commonly used inappropriately and in hurtful ways and as my good friend Beth pointed out there will always be another word to replace it!!! :-(

But I am going to keep my faith……. just as like this amazing 14 yr-old girl, Zoe Noell , writes/sings about…… “JUST BELIEVE” everyone can make a difference… it only takes one to make a difference!

So I BELIEVE the same people willing to aide other countries in need/crisis, that are
different-ly-ABLED are the same people cap-ABLE of acceptance and humanity towards our
own community members, family, friends and loved ones that are different-ly-ABLED!!

YOU CAN MAKE A DIFFERENCE!

Go ahead commit and make your PLEDGE HERE “TO END THE WORD”

BUT DONT STOP THERE COMMIT TO….

RESPECT EVERYONE & VALUE EVERYONE:
no matter how different or alike!

WE ALL HAVE FEELINGS, PLANS, HOPES & DREAMS!!

Here we go again :-{

2010-03-01T13:53:00.001-05:00

HAPPY BIRTHDAY RACHEL

2010-02-27T10:32:00.000-05:00

Putting the joy and laughter in life!

2010-02-26T00:01:00.002-05:00

These two can brighten a day and make me laugh in a matter of seconds!!!
I was only trying to take a picture of them TOGETHER for a change.
Then the antics began…
I’m not sure why but they decided to raise their legs to their ears………yes, they are that limber, but instead ended up laughing hysterically!

QUICK SNAP THE PICTURE!!!

Yes it is difficult to get a picture of them especially if you are wanting them to be TOGETHER, STILL, SMILING and actually LOOKING at the camera!!
But they definitely bring joy, happiness and laughter to life!

A Family Affair :-)

2010-02-16T22:39:00.001-05:00

We didn’t just celebrate on Valentine’s Day!

We celebrated all weekend!

It was

We spent the entire weekend together!!

(a rarity)

We even got to sleep in!!

(another rarity)

Although we didn’t do anything extraordinary

we had an extraordinary time!

Sometimes it really is the simple things in life

that are the most enjoyable!!

Dear Mother Nature……

2010-02-09T04:00:00.014-05:00

I know you have your hands full nurturing the world and I don’t pretend to know the grand scheme of your plans! In fact I commend you because once you make a decision YOU GO

ALL OUT!!

I myself wouldn’t have produced as much snow all at once nor thought to have several storms back to back in one area! But I’m sure you have your reasons. I don’t want to be a bother and please don’t take this too personally but if you would warm things up a bit I am sure these guys would appreciate it!!

I know that I really shouldn’t ask but maybe, if its not a burden and won’t cause to much havoc in your grand nurturing plans that you would possibly consider sending the rest of the snow somewhere else!! I know there are many other moms that would REALLY appreciate it!

And Mother Nature if not for the geese or the overworked moms then how about

for a poor little girl, having to pull a person much larger than she, down a very long road?

I”m just afraid if it doesn’t warm up that this poor, tired, little girl will be forced to continue on!!

NO MATTER WHAT!!!

;-]

Okay....... so maybe Carley really asked Craig (Rachel's Valentine) if she could have a turn pulling. She had a blast! He even helped by pushing himself along with NO GLOVES!
All my girls seem to love him!

Baha…………

2010-02-08T08:38:00.001-05:00

Quit laughing! I’m not referring to a jazzed up Volkswagen Bug!

;-}

Remember those?

Sorry……….I really did intend to share our thoughts about helping Macey’s hearing making her a happy girl!! Unfortunately there was very nasty stomach bug hanging out there with our names on it. Everyone in the household including those who dared to pass through our door!!

EWWWWWW YUCK!!

I don’t know if I have ever posted about our commitment to communication and speech for Carley and Macey--it is a HIGH PRIORITY! Speech itself could be another post…or three…but you'll probably have to remind me to write if you're interested in such ramblings.

When we first saw our doe-eyed little girl on Reece's Rainbow, we knew she was meant to be ours. We were also pretty sure she didn’t have good speech in her native language, as this picture shows her low tone, weak jaw and tongue protrusion.

We weren’t that concerned about addressing the speech issue, after all we were very familiar with the SRJ Oral Placement Therapy and knew how effective it would be. I am not sure why hearing never crossed our minds in the many discussions of issues we might have to work on or deal with once she was home. Maybe it was because we were so excited to bring her home...maybe because we hadn’t had any hearing issues with Carley...or maybe it just didn’t matter! But hearing does matter. It matters a great deal, especially with speech and language acquisition. And lately, I’ve noticed, it seems to play a part in her socialization and interaction too.

So is it any wonder I wasn’t satisfied with those falling-out, scar-tissue-causing ear tubes as our only option? The doc did say we would have the option of hearing aids when Macey was six. I had to know, “Why six?” He said, “Because that is typically when children are able to adequately give the audiologist adjusting/fitting the aids the information she needs." That still doesn't make sense to me--how can a child who cannot hear gain the language skills necessary to communicate with an audiologist? It seems like time wasted on tubes

But now, we just might be able to say “NO MORE TUBES” and "NO MORE WAITING" as we have discovered the BAHA!

What is a Bone Anchored Hearing Aid you ask? (Baha Bp100)? It is a tiny, digital vibrating device that snaps on a small titanium post that is surgically inserted into the tympanic bone just behind the ear! The part I like, unlike hearing aids that require the use of your ear and eardrum, the BAHA bypasses the ear which means even if there is fluid in her ear canals, SHE. WILL. STILL. HEAR!! It is specifically made for conductive and mixed hearing loss.

When I began searching the internet for families using the BAHA a year ago, to learn the pros and cons unfortunately I couldn’t find any. So we decided to visit the audiologist and get more details. We were excited to try a loaner headset and see what Macey thought of it!!

Before leaving the Audiologist's office, we discussed what would be involved with the procedure: how long the healing would take, what about if there were any major issues with the titanium post--especially due to very active, fairly rough and tumble children, etc. We already knew that our insurance was not going to cover this little bugger but what is a family to do? Right before we left her office I turned and asked her how much this loaner was, thinking about Macey, my little Brutus who is rough with most things. When she told me $3,000 I almost put it back on her desk!!

The loaner wasn’t exactly the same model what Macey would get, so we'd just have to see how it would go. Since obviously Macey didn't have the implant, she'd need a headband to hold the device in place behind her ear. There were two types of headbands to loan out, one elastic and one metal. Fortunately we borrowed both of them. The metal one fit her head and stayed on much better and so we used that one first. Once we left the the office, we had to go to Sam’s club…what better place to try it than, noisy Sam's? But after 15 minutes in the store I noticed that the metal band was making this horrible indention in her temple. I decided to take it off for a little bit. Macey was not happy with my decision! It was clear that she liked the input the BAHA was giving her, even without the implant.

When we got home I put the device on the elastic band (it was sized for an adult!) and used lots of bobby pins and barrettes. Voila! We kept the device for about 2 weeks. Macey loved it so much she would ask to wear it!

Yep, it made her VERY HAPPY! We can't wait to move forward with this!

If only I could find a trusty doctor to do the surgery whose schedule is not booked up until July, we'd be in business!

Can You Hear Me Now?

2010-02-03T00:09:00.002-05:00

AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!

No, I am not talking about cell service! (Although I do have issues and opinions on our service here!) Instead, I am going to talking about Macey and her hearing. Or maybe it's her not hearing?

When Macey lived at the orphanage in Ukraine there were about 13 kids in her groupa. We noticed even when the groups wasn't loud the caretakers yelled Macey’s name over and over. Sometimes they clapped their hands to get her attention. The more we watched the more we wondered if she had a hearing issue, or if she was just a bit stubborn. After our ten day wait we picked Macey up from the orphanage and flew back to Kiev. We stayed in an apartment with two other friends/adoptive moms, Donna (Robel Family) and Shelley. It didn’t take long to figure out Macey indeed had a hearing issue.

When we were back in the states I made several appointments for her--including the ENT. He confirmed that Macey had very tiny canals, fluid in her ears and a significant hearing loss in her left ear. She could hear perfectly on if she was at a rock concert! Her right ear had normal hearing as long as their was no fluid. Fluid happens to be a major issue in children who have an extra chromosome! When we asked about hearing aids and other options. The ENT said there was very little we could do at that time since she was so young and had limited English skills. Ear tubes were the only real option.

I know that tubes can be good and most children do fine and grow out of them. But some children that have to have several sets of tubes put in, resulting in scar tissue which affects hearing negatively. Then you add the other issue of having only one good ear and the possibility of scar tissue? Life was very frustrating, not only for us, but for her. The girl had left everything she had ever known, was thrown into a whole new life with little communication skills and no hearing! (I am in awe of her!!)

Once those tubes were inserted there was a new force in town! She was EXCITED!!

Can you imagine not hearing the world around you for most of your life and then all of a sudden you can!!! We informed her doctor that they should list a few more post-op warnings on the paperwork to include the loss of sleep for the family and the pure overwhelming excitement of the hearing child after surgery!! Best of all everyone's frustration level decreased. Macey started learning very quickly. Her English and signing improved. She enjoyed reading books and talking about pictures and their names. She was really enjoying all the life around us.

But tubes don't always stay in place. When we don’t have tubes life is NOT GOOD. It seems that she has a major fluid problem. Without tubes she can hear very little and she gets frustrated.

The second time she lost her tubes was May 2009. We were forced to speak loudly and clap our hands to get her attention again. She wasn't used to that anymore and it sometimes hurt her feelings. I guess she thought we were mad. :-( Worst of all, it would be the end of July before the ENT could put in her 3rd set of tubes!!

At the post-op check-up she had another hearing evaluation. Bad news. Her left ear had a bigger hearing loss than before, and her good ear had lost 10 decibels (hmm scar tissue, maybe?).

When I took to our pediatrician for Macey her 5 yr-old check up in December, guess whose tubes were missing? GRRRRRRRRRRRRRRR! Now she has a cold and that complicates things even more!! At this point I think we are all quite over tubes and the fact they won’t stay in.

There are days when we are not sure she can hear us and other days when we think she can. You know, “Can you hear me now?” The poor girl makes such great strides in her learning, socialization and speech clarity, only to take several steps backwards when she loses her tubes/hearing!!

So we have been looking into some different options and we think we have found something other than tubes that will make her very happy!

REALLY?!?!?

Who Needs Good Dog Carl When……….

2010-01-31T20:28:00.002-05:00

You have Roscoe and Zeus who make sure they have Brayden covered on both sides!!

Merry Christmas To All …….and

2009-12-25T20:35:00.001-05:00

Macey was so excited to see Santa.

Santa asked Carley what she wanted for Christmas and she whispered in his ear, “My 2 front teeth.”

Santa Said….. “Let me see!”

Brayden and Santa nuzzling noses.

How sweet. I think he likes the big guy in the suit.

To All A Good Night!

Feeling The Magic!

2009-12-13T01:30:00.002-05:00

While in Carley’s class, we watched and we listened to all of our directions on gingerbread house making. When all of a sudden began lots of chatter, so I glanced around to see if there was anything the matter. Thats when I saw a girl happy and excited, so I threw open my bag and pulled out my new camera ;-)

To my surprise I managed a shot and thankful to know there was at least one good one I got. Then all of a sudden all the kids began to scatter. They dashed away, dashed away right to their chairs, anxiously awaited for good things they would share!

Look at my child s0 happy, excited with all the anticipation of her gingerbread house making! But mommy is wondering and beginning to think that maybe she is dreaming of all the candy she'll eat!

Before we knew tons of candy we ate along with frosting and cookies I hope I won't have a belly ache! Then all of a sudden in a sugary rush we began giggling, laughing and other silly stuff. We were both quite sticky, had lots of fun we even managed to get our house done!

She was so proud , It was a job well done!

Even her mother was glowing and especially proud for Carley did most if it independently….WOW!

Now it sits upon our table, the center of our home a reminder of her talent, her success and her fun! if I could just stop that nibbling mouse who happens to be eating more than the house!

Mom is so lucky and there is more fun to be seen because next week it will be Macey and Me!

So Much To Be Thankful For!

2009-11-26T22:00:00.000-05:00

Family and Friends.........

A cuddly big sister home from college........

The Pilgrims and Indians......

Good Food..........

Warm & Safe place to lay my head with my Forever Family!

Hoping You Had A Happy Thanksgiving!!

A lice-Sense To Kill and I plan to use it!

2009-11-22T01:32:00.002-05:00

Warning this is one louse-y subject

and

I’m not just nit picking either!

I was vacuuming, scratching, bagging, scratching, boiling, scratching, washing..…. EVERYTHING!

Mine and Macey’s misery began one night after bath time when I decided to braid the girl’s hair and found some unwanted visitors in Macey’s hair! Yep…..lice!

Not only do these bloodsucking hook-clawed critters bring on a Yuck factor but they tend to make one itch uncontrollably at the mere thought of them!

My older children always brought home letters when they were in elementary school that said they had been exposed to lice. However we were lucky enough never to have actually dealt with them personally, but apparently we now have louse-y luck!

After researching(obtaining my lice-sense) on the internet I immediately sent my husband to the store to get all weapons necessary to put that lice-sense to good use!!

Meanwhile I began bagging anything and everything that may or may not be able to sustain one of those critters! How long these items should remained bagged depends on which of the 300 sites you believe. It can be anywhere from 2-4 weeks; I am holding out for 5-6 myself!

As for poor miserable Macey I can pretty much guarantee she never wants to see those louse-y house guests AGAIN! I treated her hair with the toxic lice shampooing kit and comb then 3 hours later I had to release her on good behavior. For the next week I not only combed her hair for hours everyday but I even used a flat iron which gets very close to the scalp and so hot you cannot even touch the hair! Thinking NOTHING LIVES through that!

WRONG…..I am pretty sure we can add lice to the list along with the roaches and rats as survivors of a nuclear war!

Not only am I vacuuming, scratching, scrubbing,scratching, shampooing, scratching and washing EVERYTHING daily….. but I had to treat that her again(I really dislike the thought of toxic shampoo on my girl). This time I combed her hair from 6:00 until midnight!! Just in case you didn’t know lice are smaller than a sesame seed almost identical to the color of her hair and the nits(eggs) are the size of a pencil dot so being COMPLETELY STILL IS IMPERATIVE!!

Thank goodness she finally fell asleep.

After this treatment I still wasn’t quite satisfied and remembered reading about olive oil! So I dumped a bunch on her head and combed some more!

I can honestly say and those who know me will agree!!!!! My disposition would be nothing like this smiling cherub cheeked child who has been woken up midnight to be wrapped in plastic after everything else!!

I was either going to drown them in oil or suffocate them in a shower cap!!!!!

SUFFOCATE??? My imagination started running wild and I began worrying and playing the "what if?" game in my head….(after all it is midnight!)

So I rubber banded the cap around her pony tail and then remembered Rachel’s bandana and decided to tie it on to make sure it kept the plastic in place!

Just look at her giggling the whole time!

Well I wish I could say it ended here but it didn’t. I sent her to school the next day and they sent her home one hour before school let out! Apparently they have a no nit policy and she still had a couple!!!

Macey’s hair was very long and I had been avoiding cutting as she loves it sooooooooooooo much, but now I was seriously considering a buzz cut or completely shaving her head!!!! Instead I consulted a few friends, several pharmacists, a pediatric nurse and a hairdresser the consensus was, "Mayonnaise!" I did cut Macey’s hair to her shoulders (the look on her face crushed me) but this was no time for Mrs. Lice Guy so I looked away then slathered her head with mayo secured another shower cap and dew rag in place and this is how she spent the next two days!

I had all intentions of bringing down the louse!!

And bringing down the louse I did!!

PS: I figured since we were miserable already and couldn’t go to school we may as well begin potty training boot camp!! (good thing she is stuck, I mean loves her mother!

Oh I almost forgot she loves her hair cut!

And Carley loves hers too!

It’s good to have a sense of humor when you live my life!!

:-)

Grrrrrrrrrrr!

2009-11-10T08:58:00.013-05:00

Every week in Carley's class they work on a new letter. On Monday she brings home the capital letter of that week and we cut out the pieces that comes with it then glue it to the letter. example last week was "G" and we turned it into a goose.

She also has an ABC book that she can either paste or color three pictures that begin with that letter. At the top of the page I write in highlighter 3 upper and lower case letters that Carley traces and this book is due on Thursday.

The teacher is well organized and we receive a calendar every month with the following in formation. The day they will have library, PE, computer etc.. It tells you what up coming events are in store and It also lets you know what letter they will be working on that week. Each Monday you are allowed to bring in a show and tell item that begins with the letter of that week......

When Carley arrived home yesterday we unpacked her backpack and this is what I found! I am a confused when did show and tell become homework?

GRRRRRRR...........I REALLY DISLIKE THIS BEAR!

Does this look like a bear that is saying oops? I really do not think a child deserves such a bear ESPECIALLY IF THEY DID NOT BRING IN SOMETHING FOR SHOW & TELL THAT STARTED WITH H!!!

Later that night Carley and her daddy worked on her actual "H" homework last night. They were turning her capital 'H" into a house!

Aren't they cute!

It took me all of 3 minutes to find the bear below and about 2 minutes to edit him to say

"oops I forgot my homework"!!!

Don't you think he looks like he is saying oops more than the other bear?

But I do not think this bear nor the other should be sent home with a child over

"show and tell"!

Are You Sure?

2009-11-08T21:59:00.009-05:00

I don't have a stepford child! How Could This Be?

MaceyCarley

Just look at my Carley, her innocent face and angel like pose!

Her snaggley smile and 3 missing teeth!! The very same mouth that says "please", "thank you" and "you're so sweet"!

She is eager to learn and wants to know it all.

She believes she can do anything and does it with determination.

She is independent and insistent (even when we try to help too much).

She loves her friends and family, babies and church. She is kind and celebrates with all.

She loves to sing, play, cuddle and watch 'toons. She has quite a vocabulary and loves to talk (it's all her daddy's fault-- shush, peanut gallery..lol!!)

However Stepford she is not, Stepford she will not be and this is quite okay with me! I don't want her to always follow the pack.

This is my girl with a little sassafras!

I am really trying to keep my sense of humor at this point about school and their expectations, discipline protocol and my girl's behavior! Carley loves school and I hope that by the time we get things figured out that she still does! It seems she comes home just about everyday and tells me that she has been in Time-out, signed the "Oops Book" or is on Number 3...... They have a system of cards and after you loose a certain amount of cards, you get time-out, you could end up signing the Oops Book and at the end of the week, depending on how many cards you're missing, you could get a not-so-happy-looking bear to bring home. And then you're not allowed to buy ice cream on Friday(the only day this class allows)!! After about 2 weeks of sad face bears I put an end to those! What happen to the positive reinforcement that we talked about with the teachers and in her IEP?

A couple of weeks went by and I didn't hear much from the school. Yet Carley would come home and share tidbits of info with me...."I hit Aiden", "I didn't follow directions," "Tomorrow I will sit in my chair in the lunch room!" Well, I know my girl well enough to know that she is realizing who has control and who doesn't. She's gaining power!!!! I sent several notes requesting information, phone calls, etc. because I wanted to discuss these issues. I was worried things would escalate. I even stopped by the school and told the teachers directly that I really needed a call as soon as possible to talk about Carley and her behavior. But I received no response at all!?!?

Two weeks later Carley got on the bus and immediately ran to the back of the bus instead of going to her seat. Once the assistant got her in her seat, I stepped on the bus and said, "Carley you know that you are not supposed to do that. I hope you are going to make better choices the rest of the day!" She said, "Yes mama, I'm sorry, I will make better choices."

Well, what do you know I got a call from the school that day around noon....... guess who wasn't making better choices? Her teacher said that Carley was all of a sudden running away from adults and we needed to have a conference to talk about her behavior...... DO YOU THINK?? I've only been wanting to address this for over a month!

(Carley has never been a runner, hmmm, think maybe she is figuring out how powerful she is?) However I was good, I bit my tongue (I bet I have a scar) and agreed to the conference. It amazes me it took them so long to follow through, but I guess the running scared them!

So far I have had two conferences with them and it seems every time I ask the teacher if there could be an underlying issue with Carley, like maybe she didn't understand fully, the task was too difficult or it was taking her longer to process the information....... the answer is always immediately "NO". "Oh no, she understands", "she can do it", etc!!

Well this was our 9th week of school . On Monday my girl came home andnonchalantly said, "Mom, I am on 3". I asked why and she told me (it really didn't seem worth a 3 but its not my class). At this point I have to wonder if she is already on 3 on Monday, what would be the point of trying to be good the rest of the week? It's too late to get a happy face bear or to buy ice cream and there certainly isn't any other positive reinforcement to work towards?!?!

But our week did not end there! Friday she came home and told me she was in time-out, but she was in her Center?? I couldn't figure it out so I said, enough is enough!! I call her SpEd teacher who already had gone for the day. So I asked for her kindergarten teacher... who gave me the same reply "No she understands" etc! I politely said, "I have never had Carley act this way, nor have we had such a consistent behavior issue. I would like to observe her for several days." She hesitated a moment, but agreed.

I just wish there was a way to observe without her seeing me! So I talked with Carley this weekend how I was coming in several days to watch her class and school, but I would not be talking or helping in any way. A mother has to do what a mother has to do even when she really doesn't want to! There has to be more to the situation.

But for the record I'm glad my girl is not a Stepford child and has a little spunk!!

I just wish she wouldn't show so much of it so often! ;-)

Full Of Life

2009-11-04T11:17:00.014-05:00

Or could it be "Life is full"?

I have tried so many times to sit and update this blog only to throw my hands in the air frustrated with my computer and not knowing where! So I am going to attempt to throw out an abbreviated version of "As The Saunders Turn!"

On The Home Front
I mentioned in a couple of earlier post about some projects for our Sanity of the SS......
Well lets just say that the projects are moving......... but SLOOOOOOOOOWLY!!!!
And yes my plans were big and we have had to scale them down a bit.... at least for now!

Hilton Vacation.......

THE "GET AWAY" PLACE:
Robbie's family has a cottage on the Albamarle sound that they built when Rob was about 13. It's a great place to just relax, have a little fun and hang out. We usually spend our days in nothing but suntan lotion and bathing suits! Its also a place I feel comfortable giving the girls some freedom to explore the water and beach not to mention they think this place is awesome! They love the beach, water,swimming, practicing their jumps from the barrier wall and riding on the seadoo!

At night we usually retire to our PJ's spend some family time together and maybe even play a few games. The real unique thing about this cottage is there is no phones and a simple TV antennae on top of the house! Remember those days when you could only get 3 stations? Yep that was our cottage until this summer when all the networks went digital so we ended up having to get cable.

Now for the rest of our glamorous life!(Bawhahaha!) And if you think we have a glamorous life I have a bridge I want to sell!

We really need to start planning our vacations better cause this year it seems we took several big ones where as last year we didn't even have one! Usually our life is just hanging out around the house, with family, going to a few local events that might pop up or just playing in the back yard.......then all of a sudden ........summer is over!

Whew this was harder than I thought! But I at least got through the summer!!

Hallucinations? OR Not? (Update II)

2009-09-28T00:05:00.003-04:00

I live with a bunch of loons and NO , "I am NOT the loon leader!

Rachel seems to suffer from hallucinations from time to time........

It would also seem that more than one person in our family suffers with these hallucinations!

Apparently this video not only cracks me up but Rachel too.
We are in the house filming hoping to remain unnoticed and trying to keep Carley quiet too!

OKAY I CONFESS

They aren't really hallucinating.

This is the second year we have had cicada killers in our yard and they are next to impossible to get rid of! They burrow in the ground, kill the grass and fly around making your skin crawl. The good news is that they don't sting (only the queen, who is usually not around) which is why we can swing tennis rackets at them as if it were a game. The bad news is they apparently have super powers and do not die or leave your yard easily. Once you hit one with a racket you had better run over, stomp on it repeatedly then smashing and twisting them into the ground and then you might be able to claim their death!

Hi-Ho Hi-Ho Off To College She Goes......

2009-08-31T21:27:00.013-04:00

WHERE DID THE TIME GO?

It only seems like yesterday I was dressing her for her dance recital "A Spoon Full Of Sugar"

or watching her waddle down the side walk behind her daddy, buckets in hand helping him water the newly planted trees!

We are so proud and excited for Rachel. She is quite amazing and we know she'll go far in life!

At least she better with as much stuff as she packed....LOL

REALLY!! LOOK.......I swear it looks like I should be transporting more than one girl to college!

(Just kidding Rachel:-)

Poor Craig (the boyfriend) came over in between his classes to say good-bye only to be put to work, hauling and packing cars, entertaining two little ones all while secretly wishing she wasn't going off to college (at least not so far away)!

Saying good-bye, even if it is just for a little while is

HARD!!!!!

Easy Rachel, your going to pop your sisters and your leaking on them! "Remember your only 4 hours away!!!"

Dad is trying to stay strong.....just look at that smile! It just so happens that ALL the woman in his life knows his little secret......(big teddy bear at heart)!
He did say he was glad he didn't have to do this again for 13 more years!

As for me, I can honestly say that for once I am happy to be behind the camera! I did continue quoting the same phrases I had been for weeks(and of course refusing eye contact) "Your Only 4 Hours Away!" "We can video call!" "Your going to have a blast!" I did manage to stay strong (most of the time) but all bets were off once our car pulled away!

Rachel and I have always been close and I do catch myself checking from time to time looking towards the door thinking she will be home soon but then remember....."She is "Only 4 hours away!"

I have even managed to resist most urges to texting on a whim like I usually do! But Robbie and I talked about trying to give her enough space to adjust, meet new people and spread those wings of freedom a bit! Lucky for us she knows her parents very well and has taken mercy on us and sends us a couple of text each day!
(GOOD GIRL)

Falling Short Again

2009-08-21T12:24:00.004-04:00

I have to apologize YET AGAIN. I keep saying I am going to update you all but it seems that life keeps throwing us curve balls. Just know we have had some fun times, some really fun times along with some rough times and some really rough times.(probably like every family out there)

Maybe once the little ones start back to school, our College girl is settled in and things go back to a regular routine I might just get a chance to share all those fantastic photos and happenings. In the meantime I hope every one is well and please keep our family in your prayers as we all make our transitions in life.

PS: my back is a little better and yes I did have a Lucy moment(well it was bound to happen). I crawled to the top of the garage (cause you know I can do it all!) and crashed to the floor landing myself in the ER room for several hours. However in the true Lucy spirit I have been trying to take it easy well as easy as one can with two wild and active little girls

My New Position!

2009-08-10T23:02:00.008-04:00

MY NEW POSITION

LOCATION!

BECAUSE OF BACK PAIN!

Which seems to be the theme for many of us this week!

I am bad at this position, really really bad! I'm not fond of the location either, especially since in this position I'm forced to take note of some very neglected cobwebs that seem to be taunting and laughing at me!! As if I don't have enough to do or plenty of things taunting me already!

It all started during the Academy Awards. Remember when I said that Macey did not like her meds and all the different ways that I attempted to get them into her? Well eventually it came down to brute force..... She was the brute I was the force!! Not only did I have to wrestle with her dead weight and slapping hands but sometimes I had to chaise her down and carry her back dead weight and all! She also needed quite a bit of cuddling so she was in my arms A LOT!! At times I am sure it was a love hate relationship but after the tears and drama I would give her a smile and tell her "Its a good thing your cute!"

I can't blame Macey entirely for my new position. I am sure most people who had a very tight back that felt as if one wrong move would take it out completely would take it easy for a couple of days ..... Right? WRONG!!

I reorganized the girls bathroom, started in on some closets, changed some furniture in the den, rearranged Carley's bedroom and put the canopy on her bed, started working on Macey's room then after hanging some curtains I stepped off the ladder and it felt as if my back had separated. The pain brought instant tears to my eyes and that is when I decided I should take it easy. That lasted for A DAY, yes I am a slow learner or very defiant and stubborn (it is a toss up)

But I should have listened to my back cause now I can't do anything! Even walking is difficult let alone taking care of two very active girls who want to do EVERYTHING but BE STILL!

I'm not sure what bothers me most the pain or the fact that I WANT TO FINISH MY "TO DO LIST" After all School is right around the corner and I have so much I want to get done! Not to mention we have to move Rachel into college in about a 10 days!! :-(

If only this position came with strong backed, able bodied people then I could just dictate my "To Do List!" in which they would complete with perfection! (A girl can dream can't she?)

The good news is Macey is fully recovered and is now eating gold fish, which is the only thing she wanted the entire time she was recovering but not really!

And The Academy Award Goes To............

2009-08-02T04:00:00.013-04:00

Macey!!!

For Best Drama

When Macey was taken to the recovery room she woke up almost immediately. She then popped right up and wouldn't lay down, she was looking for me and started getting upset so they came and got us right away.

We then had to meet some criteria Before we could go home. One of which we had to at least get 3-5oz of fluid in her. During this time is when I realized I was going to have a very high maintenance patient! We tried apple juice, Popsicles and then a slushy, she wanted no parts of any of it! I decided a little later it was going to be the slushy cause we were going home!

So the drama began..... She would take a little spoonful and I would say oh what a good girl then she would give a little cough sort of sound and I would say oh you poor baby, let me wipe your mouth(dabbing all around it, giving her lots of sympathy) you did so good you poor baby, then she would drop her head down and I would rock her saying that poor baby! Well this worked cause then she would pop her head right back up and point for more slushy so we could repeat the whole process over and over and over!! Bad news she still wants me to wipe her mouth today! The good news she could hear things all the way across the recovery room and would say mama.....and point and I would say yes that is a baby, or yes I hear it, etc...

For some reason I couldn't get the sound to work on the video so here is a little synopsis.

I gave Macey ice cream and the whole time I am up she is whiny MOM and says "ouch" after every bite. But once I sit down and give her sympathy and wipe her mouth that disappears only to reappear as soon as I get again! I also noticed that she said ouch a couple of times when she only touched her lips! Hmm, could this be drama ?

It makes it a bit challenging to figure out how much pain or how much drama is going on when you have a child who isn't very verbal. When I looked in her mouth it doesn't look very red or white it kind of looks the same as before. Not to mention she says ouch when she only puts the ice cream to her lips. Then there is the fact that I haven't allowed any lapse time with her pain meds!
Macey has been fairly cooperative when it has come to the liquids, she will even appease me a little bit when it comes to solids(soft ones of course). However when it comes to her meds defiance, stubbornness and pitiful looks have a whole new meaning!!
I have tried everything in order to make the dispensing of pain meds easier. I have put it in yogurt, juice and then finally I froze it with some Italian Ice and sometimes Popsicle which worked better than anything else except for the middle of the night dose (ever try to give a Ukrainian an ICY in the middle of the night?) When the hospital called to check on her they suggested chocolate syrup(THIS BOMBED BIG!) So far Ice Cream is about the only thing she will take orally without a lot of protesting. So I decide to mix ice cream, chocolate syrup and the pain med all in one and freeze that too! SUCCESS! So now I can alternate icy and ice cream.... pain killers!! I'm still not sure what we are going to do in the middle of the night!

Me: Macey you need to take your medicine.....

Macey: NOOOOOOOOOOOOOOOOO!
Me: It isn't a choice!

(This is the most pitiful face I have ever seen!)

The only time she gets those big crocodile tears and sad eyes is when she is truly heart broken, worried or in pain! (Her dramas and defiant moments are much different)

On The Day of Surgery!

2009-07-31T15:03:00.011-04:00

My doctor gave to me

The 3rd set of Tubes.

Took 2 Adenoids

And

Now my tonsils GONE!

Oh whoa is me the pain and agony!

I think mommy wants to flee!

How

I hate those yucky Meds!

TA DA!!! (her new favorite word)

Macey did very well in surgery and we can FINALLY HEAR AGAIN!!! She is a true Saunders though and doesn't handle feeling badly with any grace but with plenty whining)!! She only wants mommy.....PERIOD! Daddy wasn't even allowed to push her stroller out of the hospital! (His feelings were a little hurt but gave in to her protests!)

Update Part I - (IEP's)

2009-07-28T03:00:00.000-04:00

I started this post out as a Flashback Friday and realized it would take every Friday from now until 2010 to bring you up to date on "The Saunder's Saga,".......LOL!

Carley and Macey's IEP meetings and yes of course I took MY ETHEL! (who else would keep Lucy out of trouble!)

Carley will be going into Kindergarten (I decided to wait until her 6th birthday). We have been very blessed by Carley and with her. She hasn't had any medical issues so far which is probably why things have come fairly easy with/for her (so far). We still have had our ups and downs as well as frustrations along the way, but since Carley tends to be very eager to learn (constantly asking for sight words, to read books and play learning games) she has made teaching her pretty easy (honestly, keeps me on track). So when it comes to her IEP meetings I feel a little more confident in my abilities, which enables me to feel I can reject their IEP and take matters into my own hands(home school). Since Macey has had such a different background there are some areas she needs to catch up while in others she even surpasses Carley making me a little insecure and afraid that I might miss something in her learning process. So I tend to be a lot more nervous and worried when it comes to her IEP Meetings. However I can't really complain too much when talking about Carley's IEP process and/or meetings I just wish I could say the same about Macey's! But for some reason the quality and process between my two girls has been very different!

Carley's IEP 2009/2010 school year!

Ethel (my hero) started Carley's meeting reminding every one that Carley and Macey were two different children and that any decisions made today would be based strictly on Carley's needs ALONE! (there was some question about what teacher's they would have)

I then followed stating: "Carley is a very capable child, cute and can be quite charming when she wants to; she is very good at manipulating situations, figuring out who is going to be a push-over and who isn't! We have learned in our journey with her that sometimes people overlook things that she might say, do or not do because she has DS. I want to make it very clear that we have very high expectations for her, we make her walk the straight and narrow, put forth her best effort and the fact that she has DS does not change any of our expectations, dreams or hopes for her and I would expect you to have and maintain the same standards and high expectations!
Some of their Replies : "Of Course," "absolutely" along with nodding heads.
However I was pretty sure their expectations weren't going to be the same!

The meeting proceeded accordingly (plop, services, how often, blah blah blah..) all was fine UNTIL we came to the academics (you know expectations).

First was math. (confession: although an important subject, not my favorite nor my main concern right now) I asked what was in the K-Math curriculum? They explained and then went on to say they would be pulling her out for one-on-one math!
Irk...Stop, the curriculum is fine but I am going to say at this time I would like her to remain in the class with her peers and the para/assistant can join her for any extra help if needed. They were a little shocked and reluctantly agreed but made a point of saying we could revisit if there were any concerns later.

Then we proceeded to letters, phonics and sight words. They discussed that she would read 10 sight words at 80% accuracy and they would pull her out for extra 1-1 help.
Irk...Wait a minute, "how many do you typically do in Kindergarten?" They said, "usually 40 sight words." Hmm, I don't think their expectations are as high as mine! We went on to discuss that I expected her to learn 40 sight words with 100% accuracy and yes they could pull her for 1-1 assistance. (Jaws dropped a little but no real objections) I also said, "that there should be no reason why she couldn't do this since she is very eager to read. Again I really can't complain about Carley's IEP since they offered more than we wanted and pretty much agreed with everything!

A little about Macey
Macey is always eager to please, willing to learn and has the best belly laugh EVER! Although there were some deficits that were obvious we couldn't help but be amazed with the abilities she did have. We also are quite impressed with the great strides she has made in the little time she has been home. Her understanding of our language far exceeds her verbal language, we do sign along with verbalizing those signs (all verbal attempts are praised but are required). But she has always been able to make us understand what she wants; I am sure that it helps that her emotions are written all over her face, is animated, along with her persistence and patient!

I really have to stop myself sometimes because I tend to want to baby her even though she is quite capable. I did noticed in Ukraine that Macey's couldn't hear very well this was later confirmed. (she has normal hearing in one ear when there is no fluid). I remember when she first came home I would have to stomp my foot or clap my hands really loud to get her attention(I bet she thought I was crazy!...probably still does!) Then we got tubes which made a big difference.

She also didn't have a pincer grasp, but palmed everything which didn't seem to slow her down! She had very low tone and major tongue protrusion (that I am sure hindered her speech clarity in her own language). On top of that had to adapt to our culture, learn a new language, bond with her forever family and leave everything and everyone she has ever known! She is a survivor!

From The Beginning Macey's IEP Process:
In the Spring 2007 right before going to Ukraine my thoughts were that Macey would attend the pre-school program(Ipop) with Carley the following year to help her adjust. To my disappointment I found out that they would not be able to hold a spot for her because she was not an "identified child". Upon arriving home in August 2007 I was relieved to find out there was still an opening left and went to the school in order to get the process of "identification"(testing) started right away. However they wanted to take the full 65 days allowed to identify her! I expressed my concerns that if someone with an existing IEP wanted to attend that spot would be filled.

During the time Macey was being tested (yes 65 day process) I started noticing more and more that I was her security blanket. She didn''t want to go anywhere or with anyone unless I went. I could only leave Macey at home if Robbie, Elliott or Rachel were there and only for very short periods of time. Macey would sit in my bedroom floor, on my side of the bed with the saddest face until I came home. So in all honesty it was a good thing she didn't go into the Ipop program right away we needed that adjustment and bonding time no matter how eager we were for her to catch up. It also gave her the opportunity to go with me everyday to drop and pick up Carley from school letting her know that mommy always comes back.

After all the testing and eligibility meeting it was time for her IEP meeting (November 2007).
So it began! We agreed on the services, how often, how long, blah blah blah and then there was location......
IRK! STOP! They wanted to send her to a different school(Cov) several miles away and she would be in a restricted classroom... (They must be crazy!) We suggested that she receive services in her regular educational setting "HOME"( after all I was her teacher and home was her current educational setting).

The principal tabled the meeting to find out the rules/laws of such a request especially since our school system has never done this nor were going to take the word of Lucy and Ethel!

By the time we finally had another meeting it was February 2008 and the other principal had to fill in due to an illness then we found out the information still hasn't been obtained, so meeting was tabled AGAIN! We didn't have another meeting again until April 2008 which was then mediation!

I will admit I was very intimidated by mediation, but not Ethel(my hero)! We brought research and articles discussing attachment and possible attachment disorders as well as the fact that it was legal to receive services in the child's regular educational setting, blah blah blah. They stated their case of how it would be more beneficial and less restrictive if she was in a school setting blah blah blah......

Then all of a sudden one of the school board officials, we'll call her Ms. C, asked to take a short break. When we came back Ms. C looked right into my eyes and said, "Mom you just have to learn to let go, she will do fine and it will be great for her! Plus I was able to pull enough money from my budget to give her a one on one para for all her adjustment needs if you agree to send her to that school!" I was stunned(so was everyone else in that meeting) and my knee jerk reaction was will that para be wearing a mommy suit!! It was as if she heard nothing we said! Now I am a little (a lot) angry and not so intimidated anymore but I took a deep breath and assured Ms. C that mom didn't not have a problem letting go especially since she was in need of a real break after 8 months of being with children 24-7. However I was not going to jeopardize Macey's trust, security or attachment in order to appease the school system!

Bottom line: We compromised she had a few of her services in my home, I took her to her home based school (not Cov) for the other services and I attended too with the plan of putting er in Ipop in the fall! It took 8 months! UGH!

This is where I should mention we had Carley's IEP (May 2007) shortly after Macey's mediation. We agreed she would attend the Ipop program again the next year. August 2007 they called me and said Carley could not attend the Ipop program again because she would be 5! I said but we have a signed IEP saying she was? So they dropped it! (I knew they were going to raise a stink the following year with Macey) So Macey and Carley both attend the same Ipop program together for 2008/2009 school year!

January 2009: They started dropping info!! We know Carley slipped through but we cannot let that happen again so Macey isn't going to be able to attend Ipop for the 2009/2010 school year because she is going to be 5 so you need to decided what your going to do! They followed up by giving me a slip of paper with the state law about age and kindergarten (it was only the partial law mind you).

May 2009: Macey's IEP meeting was started with the principal stating the school boards policy and stand on the placement of Macey for the following year (Kindergarten.) I am not sure this is legal!?! However we continued the IEP meeting, discussed the services, how often, how long, blah blah blah..... setting......Kindergarten!!!

IRK.....Wait A Minute!! We said she is not ready and we are not sending her to kindergarten, period! She needs to be back in Ipop not to mention it is time for her and Carley to spread their wings separately and be able to shine on their own! We even polled the team off the record with the split decision of Ipop vs. K as the best setting. However the wishes of the school board were much more intimidating than giving this child her INDIVIDUAL plan! So we started the paperwork requesting mediation that some how was misplaced.

July 2009.... Mediation! (yes JULY!)
Here we go again! Each side states their case ours being it is more appropriate for Macey to attend Ipop again (Ipop teacher also agrees). That the law states you do not have to go to Kindergarten until your 6 and can attend pre-school when your 5.

Ms. C states that the school system's policy says you cannot go to Ipop if you are 5 and that they have interpreted the law as such. The Mediator said we can take a 15 minute break and I can call the Virginia Department of Education's lawyer and have the law clarified, "would everyone accept their clarification?" We all agreed we would!! 15 minutes later we came back except for the school board people who arrived 40 minutes later. ( HOW RUDE!)

Apparently they are not as good as their word!! During that 40 minute delay they were calling their own lawyer and officials and I guess had no intentions of accepting the word of the state's lawyer! Not only that but when they did finally return Ms. C had in hand Macey's last report card which I never received until then. Ms. C was trying to bring up things that had already been discussed and agreed upon! As she continued, Robbie interjected to point out, rather firmly, your report card states clearly that Macey would do best in Ipop! Ms. C then asked if we could break for lunch and they would gather more information and we could come back to the table to discuss things further later that afternoon! EEK! I am not sure Ms. C was at the same mediation as the rest of us!

But Ethel (my hero) had to be somewhere later that afternoon and Lucy & Rickie weren't too sure they could be trusted alone with this woman! However Ethel (my hero) knowing Ms. C seems to either be on a different planet or has her own agenda and can't be trusted, makes Ms. C state clearly for everyone before leaving the meeting that if the Saunders Family returned that afternoon it would be for a definitive answer either way (Yes Macey would attend Ipop" or "No she couldn't! However if the the answer was "NO" then the Due Process Hearing needed to be started. PERIOD!

Bottom Line: Macey is attending Ipop this fall. The law did not support their interpretation and supports that a child can attend preschool until the age of 6!

Now as for Ms. C, I'm really not sure how she got her position or how she holds on to it!

Ethel --- HERO! (many times over)
Ms. C--- ZERO! (ditto)

PS:
Part of me is a little disappointed that the school is getting my girls, the other part of me is jumping for joy at the thought of a little alone time! I also cannot forget that both my girls really love school and enjoy their friends.

PPS:
But if truth be known I am pretty sure if it weren't for ETHEL(my hero & friend) I wouldn't have developed the confidence I now have before walking into either girl's IEP's. Nor would I have the confidence, strength, willingness or support to home school them if the need should ever arise. To you Ethel I am thankful for your friendship, encouragement, wisdom, wit, laughter and support. Little did I know back in 2004 when answering your phone call that our family was going to be blessed by you Mertz's!!

Mischief Makers x 2

2009-07-22T09:40:00.002-04:00

ME: Macey is that mommy's make-up?
Macey: (giggle) yeah.

Then she pointed and ran to Carley.

There's nothing like your sister to pull you into a situation.......Just In Case There Is Trouble!

ME: Carley why the sad face?
Carley: 'Cause I have something behind my back.

ME: What is behind your back?
Carley: I don't want to tell you!

ME: Have you been in my make-up?

Carley, dropping to the floor with a little "Ohhh!!" and then, "Yes!"
ME: Why?

Carley: "Cause I wanted to!"

ME: "Are you allowed in my make-up?"

Carley: "...NO!

You have to love the honesty, but not the mess or the condition of my make-up at the end end, but definitely the honesty!

Do You Know What Happens When........

2009-07-13T15:56:00.008-04:00

It's rainy outside and you watch too many home improvement shows?!?

The other week after watching a couple of home improvement shows one of them really peaked my interest and got me to wondering...

While Robbie was at work, I decided to do a little investigating (I am sure he will want me to x-plain when he sees this!). Maybe they should put warnings on those shows "Don't Try This At Home"

So the curiosity was more than I could stand on this HOT HUMID RAINY DAY and Lucy could be contained no longer! So I took a tire iron (I know it seems an odd tool to choose) and WHACKED a couple of holes in the wall! When I peeked in the holes with a flashlight I was pleasantly surprised!! I then tore the rest of the wall out, cleaned up all that sheetrock and now I have SPACE!! You just never know what you will find if you whack a hole in a wall. However be very careful and don't hit any pipes or electrical lines!!!

:-)

PS: This wall just happened to be in the back of a closet! I figured I could just close the door if something bad happened and I would not have to x-plain until much later! LOL

That's My Story And I Am Sticking Too It!

How could this be?

2009-07-09T12:11:00.007-04:00

My little bit has lost her first tooth..........She is growing up so fast....too fast!!

She is so excited and cannot wait until the Tooth Fairy comes and takes her tooth away....

Oops I guess in all the excitement we didn't think about blowing the poor girls nose!

My Goofy Has Such Grace!

2009-07-06T12:30:00.002-04:00

Well, so far the summer has taken off at record speed, not even slowing for the bumps and curves along the way!! I have fallen way behind with my postings, but with any luck, the arrival of the promised lazy days of summer will appear and I will be able to update and bring you current on the Saunders Saga--I mean, Happenings!

Years ago I nicknamed Rachel "Goofy" mostly because the only cartoon she would watch for a long time was "Goof Troop". Later we realized that she wasn't just built like me with short stubby legs, but seem to have a few other characteristics like her mom too; therefore 'Goofy' was actually a good fit!!!!

Somehow a Saunders gene must have snuck in, because the girl grew instant long legs overnight which made her a bit clumsy. Hence the new nickname Goofy-Grace!! She did finally grow into those legs and wasn't quite as clumsy, so we eventually dropped 'Grace'! However she hasn't been able to shake that Lucy gene, so "Goofy" has stuck with her, on her, to her (lol)......... Luckily she is okay with that and even has a good sense of humor about it (among all the other things her crazy parents do and say!).

It is hard to believe this girl is 18 and Graduated! Soon she'll be heading off to college!! There have been days that I tell her, "You better hurry up and get to college or I might have to throw you out"!!! Then there are days I tell her, "What do you mean you need that for college? You're going to do college online in our dining room!!

I cannot tell you how much I am going to miss this girl. She has been my sidekick for as long as I can remember. I could take her anywhere with me and she never complained and was perfectly content and happy no matter what we were doing. She has grown into being pretty much the second mother to the two little ones. Sometimes I do rely on her too much and expect her to just know things at times (hey--that is her fault for being so good and helpful!).

I know that she has to go off to college and sprout her wings and we will manage without her. (MAYBE.) I know that she will find her way and whatever she chooses to do she will be good at it. But I also know THAT IT WON'T BE THE SAME WITHOUT HER HERE!!!!!!

Another Day, Another IEP

2009-05-28T07:47:00.002-04:00

This afternoon I will be going to an IEP meeting for Carley....... and yes armed with an Ethel! However I am sure this one will go much better than my first IEP about a month ago (Macey's).
I have been very fortunate in the fact that all of Carley's IEP's so far have been fairly straight forward and without issues or conflict and I am anticipating this one to be the same.

Although I will confess that I have adopted the attitude that if things do not go well that I would just home school her! Carley is eager to learn, makes it fun, she is pleasurable and has been very easy to teach (so far). I have been a little more reluctant to say that I would home school Macey but only because I 'm worried about my shortcoming. Plus I thought if I was going to begin officially homeschooling for the first time I had better start with the easy kid! Now with that said there could be a good possibility that I will in fact be homeschooling and it won't be with the easy child first!!! We will have to wait and see what happens in Macey's mediation. One thing is for sure no matter what the disability or who the child they all deserve the best!

Figuring out what is the BEST is bird of another color!

The Word Is Out!

2009-05-22T10:33:00.011-04:00

Apparently word has traveled that The Saunder's Sanctuary is undergoing some much needed renovations and repairs. However the work in progress is a bit slow but rumor has it that it will be the place to be!

I on the other hand wished the word would've been
"NO VACANCY"

Work Halted Due To Furry And Feathered Critters!

A mother bunny decided to make a nest for her babies right beside the pool where tons of work is needed! We originally thought there were only 3 adorable babies but learned that there were actually 4.

Getting bigger..........

Ready To Go!

This is one of the many baby birds from one of the many bird nests located in inconvenient places which has helped halt our work.....

Rachel saved this bird from drowning in the pool the day before. Today she had to go out and chaise the neighbor's cat away. All the commotion and fear he suddenly realized he could fly and in his panic stricken flight he landed on the side of my chimney. I'm not sure how he is able to perch there but I am sure he is just glad he has ESCAPED!

SAID CAT!!!!

Doesn't he look like he is on the prowl!

So between, Mother's Day, IEP meetings, denials and preparation for mediation, Birthday's, Working on Mother-n-laws place, Prom preparation, Senior pictures, Pre-school field trips, and the rain work has been moving slow! A lot slower than I want!

I was informed that green was in fact NOT IN!

So with lots of shock and vacuuming I soon realized I was having to work much harder than I should be!! I realized eventually that the pump and filter were not working properly so I began breaking it all down to find the issues (I REALLY HATE BREAKING THE SYSTEM DOWN!) In a moment of weakness, frustration, and exhaustion I called several pool companies to see what the charge was to just fix it all for me..........

Needless to say I broke the entire system down, cleaned it thoroughly, replaced many components, seals, knobs and baskets myself with only a few cuts, scrapes and some frustration! But it was only a fraction of the cost I was quoted!

So a little progress has been done....

Meanwhile someone told Carley that we could not get in the pool until it was blue! So here is out conversation many times a day and everyday!

Carley: Is the pool ready?

Mom: Does it look ready?

Carley: No, it is not blue!

Mom: Your right and it is not warm and the chemicals aren't right it is going to be a long time before the pool is ready!

Then after several times of going through this very conversation I finally would stop her and say, "NO, we are not going to talk about the pool anymore! We have already discussed it and you know the answers!!!" Carley, Fine!

When the pool turned blue!

Carley: Mom! Mom! WE CAN SWIM THE POOL IS BLUE!

Mom: No Carley we cannot the pool chemicals are not right, it is freezing outside, or it is thundering outside whichever the day brought!

Carley: Later?

Mom: NO! I will let you know when the pool is ready!

Carley: I sure wish I could get in the pool!

Mom: sigh!

This has gone on everyday, several times a day!!!! I even let her get on the top step one day.....

Carley: brrrr that water is cold! Mom you should tell me!

Mom: UGH!

Sometimes you just have to let them learn the hard way! Although the questions about the pool have not stopped completely they are not as frequent and she usually answers her own questions!

Update On Magic Marker Mishap!

2009-05-18T22:17:00.008-04:00

The week has flown by but I thought I would give you the update on our little Ms Magic Marker Menace. I did let her show off her creative art work the Entire Day. Besides the girl obviously worked diligently with great purpose and intent to get such coverage! (if only her art on paper were as complete! lol)

The girls played in the tub for a REALLY LONG TIME! (which is fine by them)

Once they were dried and dressed:

Mom: Macey, did mommy like you coloring on your skin?

Macey: No verbal reply needed!

(Think maybe she might have just nailed mommy's sentiments on her choice of canvases!)

Mom: Macey let me see your arms.........are they clean?

Macey: Yeah!

Mom: How about your leg and the bottom of your foot?

Macey: Yeah!

Mom: How about the other one?

Macey: Yeah!

Mom: Macey are you going to color on your skin again!

Macey: Hysterical laugh with animated face!

(Hmm...not getting the impression she meant NO!)

Even with a Monday full of mayhem such as these Macey has a way of melting your heart, bringing a smile and making you forget all about the magic marker mishap!

Magic Marker Monday?

2009-05-11T16:24:00.005-04:00

I really don't think this is the Magic Marker Monday

Michelle over at 5MFSN was talking about!

What Mama?

There are two things that I wish I could say at this moment:

1.) That this was the first time she has colored her skin!

2.) That it wasn't with PERMANENT MARKER!

We go to great lengths to hide all pencils, pens and markers to the point that we can never find a writing utensil when needed. I guess next time I will just ask Macey!

A Mother's Day To Remember!

2009-05-10T21:57:00.016-04:00

This was the card my college bound daughter, Rachel aka Goofy, gave me on mother's day!

(front of card )

"Sugar and Spice and Everything Nice,

That is What Little Girls are made of!"

This is why Rachel is going to college online in

MY DINING ROOM!

(inside of card)

"At Least until the sex, drugs

rock'n roll kick in........."

"Just kidding, Mom!"

(I really don't know where she gets her sarcasm from?!)

My kids always make me breakfast in bed on Mother's Day. They go all out with a variety of my favorite breakfast foods on a fancy tray with perfect place settings and beautiful fresh flowers from the yard! They're always excited about Mother's Day.....you would think they were getting the royal treatment instead of me!

Carley and Macey made me these adorable birdhouses

THAT I LOVE!!

(This is the very first Mother's Day present Macey has made me!)

Another gift, which doesn't seem like much, but it's big!

Elliott and his family are back home in NC,

BUT he remembered to call his Mother

Mother's Day!

But the BEST GIFT of all was a personal message

written by Rachel in her card!

(Warning Warning Warning)
This message causes tears!

To the mom who's been my everything: my provider, my pillow, my maid, my nurse, my enemy, my best friend, my sounding board, and more. You've made me who I am today, and for that I thank you. (No sissy girl's here!) These 18 years have gone fast, with the good and the bad. I wouldn't change a thing!
I Love You Mommy!
Love Goofy
Disclaimer: I did eventually tell her that if the inside of the card comes true I am not taking claim to her personal statement, "You've made me what I am today", I was blaming her daddy!" lol-wink
I AM A VERY BLESSED MOMMY!

2009-05-10T12:18:00.002-04:00

HAPPY

MOTHER'S

DAY

Sanity of a Sanctuary or BUST!

2009-05-08T11:00:00.002-04:00

The Saunder's Sanctuary, HA....more like Saunder's Sloppy Slum!

I made a few decisions in the beginning of the year. One of which was to whip our very neglected home and yard back into the beautiful, relaxing sanctuary that we love and enjoy!!!!

MY PLANS ARE BIG!! REALLY REALLY BIG!!!!

PROBABLY TOO BIG FOR THE TIME IN WHICH I WANT THEM DONE!

These plans of mine involve concrete (poured, stamped & stained), gardens, erecting and repairing of playgrounds complete with playhouse, zip lines, tunnels and more. There is weed removal, deck remodeling with hopes of a covering over it, then there is the sanding & painting that needs to be done. Pool cleaning, repair and safety features that need to be done. Building of storage and/or a garage/shed for our overflowing garage and husbands toys and projects! (don't ask)

Then there is my personal desire, one I have been designing, contemplating and mulling over and over in my very active brain! A cozy relaxing patio designed for full access to arts & crafts of all types, chalk boards, magnet/dry erase boards, playdoh, new discoveries and explorations (messy & neat), fine motor and mind developing items and activities that are fun and engaging, beautiful potted plants, comfy lounging (so one can thumb through magazines) along with gentle breeze fans placed appropriately for every ones comfort! (after all it is hot and humid here!)

YES I have big plans for this place

I WON'T BE STOPPED.....DO YOU HERE ME RAIN??

YOU CANNOT DAMPEN MY SPIRIT!

OH BROTHER!!!!!

Seeing what needs to be done in actual pictures makes one realize how big ones plans really are and how much work and time it's going to take!!! So if any of you out there are bored or need something to do come right on over I got plenty and I am willing to share!

Specially if you have a pool person who loves a challenge!! ;-}

Down Syndrome & The Diagnosis

2009-05-07T13:01:00.006-04:00

Search engines like Google can prove to be very helpful but can also land you in the most unsuspecting places! I can occasionally see what a person is actually looking for but ended up here instead. Most of the time the phrases used are something simple and harmless other times they are heart stopping and shocking. I was surprised once by an individual who landed on my blog because of my posting about Neon Signs. This person was looking for an actual neon sign. However google dropped them here instead but that same person stayed, read a bit and left me very nice message that really warmed my heart and made my week!

Then there are those searches you think about often, the ones your pretty sure are due to a diagnosis of Down syndrome. Having been there once your heart instantly goes out to them cause you remember that time. You wish you could have stopped them before fleeing your blog to offer them a smile and a reassuring word. You wonder why you didn't do a post about it like your wise friend Beth.... ;-)

Yes my friend Beth at Hannah's Shenanigans has also had a couple of those searches only she put her thoughts in perfect print. So click on over and read the honest and eloquently written post on Prenatal Diagnosis..... The Worst Down Syndrome.

Maybe one day I might be able to put my feelings and thoughts down eloquently too??
Lucy has dreams and aspirations ya know!!

THE CIRCUS!

2009-04-30T13:18:00.009-04:00

~~~~~~~~~~~Hehe~~~~~~~~~~~

No I am not talking about the Saunders home or gang, this time! I am actually talking about "The Greatest Show On Earth" "Ringling Brothers Barnum & Bailey Circus!"

ZING ZANG ZOOM..........

"There is Magic In the Room

Don't try this at HOME!"

( Theme Song)

It has been many years since I have been to the circus! It was Macey's and Carley's first circus and they thought it was fabulous. They were a little leery of Mr. Gravity whom they thought was a bit loud and not very nice. After they figured out that Alec, the circus leader, was going to make sure that Mr. Gravity behaved himself they were a little more tolerant of his presence.

Macey cracks me up!

They got really excited when the elephants came out but who wouldn't they are pretty impressive beasts! I can honestly say that I wouldn't want to be the woman hanging out with Asia , especially if I wasn't the woman who made sure they had their dinner before the show!
(Yes she is hanging from her mouth!)

The tigers are my favorite and they even had a white one! A couple of them seem to be a little on the moody side cause the the Lion snack, I mean trainer, made sure to keep a good distance from a couple of them and he remained well armed with whips and sticks until those particular tigers were back in their locked cages. When he began to call a couple of them down to line up on the floor two of them came at the same time and before he called them. The trainer backed up quickly, really cracked his whip, fussed a bit which made them shrink and run... (Just like kids when daddy fuss children listen!) The one that was suppose to stay was told she was right to come back that she was alright it wasn't her fault. Apparently the tigers were not feeling the love and were a bit mad at dad cause he didn't bother to kiss or hug any of them like he does in the video and I have seen in other shows...

I did notice that all the trainers and handlers praised all the animals a lot throughout the show!

~~~~~WOW~~~~~

Brayden

2009-04-28T09:20:00.007-04:00

It would seem that I have a little competition!! I may never get the chance to spoil him rotten. Every time I try and get my hands on Brayden there always seems to be another pair of hands reaching out to take him right away!

Hmm~~~ it didn't take Brayden long to figure out that Macey is our comedian!

Carley really did a fabulous job feeding him......
even though I wanted to do it while rocking him!
On the bright side the look on her face is priceless.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Later that evening Elliott and Kristine wanted to go out.......I said, "SURE"

This would be perfect the little girls would be in bed, Rachel would be at work and Robbie is perfectly content staring at him while I hold him (he is convinced babies break?) so I would have him all to MYSELF!

Braydon was just waking up and I had only been cuddling and rocking him for about 2 minutes when who should walk in the door and INSIST on holding her nephew???

YEP, Rachel..... UGH!

They were snuggling on the couch and after a little while I looked over to INSIST she give him back when I saw this adorable picture! So there was only one thing I could do... Get The Camera!

There you have it....... COMPETITION! One day I might actually get him all to MYSELF!

IEPs are completed better with Ethels!

2009-04-24T21:50:00.021-04:00

Everybody should have an Ethel! You know that someone who is right by your side even if you're crazy, have harebrained ideas, constantly causing trouble or in trouble, and even when your life is always full of drama! I am lucky and blessed enough to have an Ethel who makes my life richer, a lot more fun, a little less stressful and a whole lot of happier! I am sure I don't tell my Ethel thank you nearly enough or how much I appreciate her and what she does!

SO HAVE YOU THANKED YOUR ETHEL TODAY?

It is my favorite season (sarcastically speaking), the season for IEPs!!! To me IEP is not an acronym for Individualized Educational Plan, but an acronym for "Individuals Exasperating Parents!" I also bet you didn't know that IDEA really stands for Individuals Deciding Evasive Action! LOL.. Okay so not really but I bet you can read a lot between those lines.

However, I will get through my children's IEP's. It may be with huffing, puffing, pouting, some smiling, a little stomping, a lot of nudging, a few sarcasms, a couple of "you've got to be kidding me looks", some tears, a little laughter, a few okays, some sighs, and maybe even some jumping up and down. However there will not be a complete melt down or terrible tantrums(maybe) because Ethel will keep me together! She will be right there making sure our goals point in the right direction, pushing and pulling me and maybe even bringing me back in off the ledge! In the end our girls will have IEPs that suit them and satisfy the rest of us!!

Shhh......Let me tell you a secret,

What I much rather do is take the OSTRICH STAND but I know that I can't!

(Not That Ethel Would Ever Allow That!)

So just in case we haven't told you lately, Ethel, we really appreciate all that you do and value your friendship more than you will probably ever know...........even when it isn't IEP season!

THANK YOU, THANK YOU THANK YOU

YOU'RE THE BEST!!

Disney Dreams & Magic Moments

2009-04-22T20:36:00.006-04:00

Well it is true, once we did make it to Disney we had an absolutely GREAT time.... Very TIRING but FUN!!

The little girls loved it and couldn't wait to do it all! Every day Carley asked, "Am I going to see Mickey?" Finally on day 3 she got to see MICKEY and was THRILLED!! We did learn that one of the girls is a Dare Devil ,while the other one is a Show Diva!

Rachel and I loved riding Rocking Roller coaster which goes from 0 to 60 in 2 seconds..... WOW!! I would never be late again if I could drive that way on the real road! We also road the Tower of Terror where "All guests are welcome but might not leave..... bawhahaha!" Carley actually qualified for height and begged to ride with us. It had been such a long time since we had been on the ride that I actually considered it. But I was more worried about the questions that would arise about ghosts! Boy am glad I ended up saying NO because I had forgotten how long you are in the dark, and how fast and frequent the drops are! It was a quite a bit more scary than the falling grab she rode!

Rachel brought along her fancy camera (she has become quite good at photography) and had lots of interesting and pretty things to photograph (no I don't mean us!). This was really nice for me, since I am never in pictures because I am usually the one behind the camera!

It is amazing how small the world is....... We saw several families from our hometown, and even people from our neighborhood enjoying the Magic!

We met several new families who also have loved ones who are chromosomally enhanced. That was really cool too!

Road Trip!

2009-04-14T21:13:00.008-04:00

The traveling portion of our trip (11-13 hour car ride) isn't necessarily my favorite, but I really can't complain since the girls did really well.....

I must confess that I tend to be the worst of our traveling pack. Especially if I'm a passenger instead of a driver. If there isn't any good music to tap my foot too, sing off key with, or create silly dance moves for, there had better be some interesting conversation going on!

Yes. I apparently could be considered a high maintenance traveling partner. I bore easily and don't cope well with boredom! However, in my defense, I do get car sick so reading, coloring, playing games or crafting of any kind is not an option. And Robbie NEVER lets me sleep! Rachel is probably the runner-up in the traveling terrors. She also gets car sick; however she has always been our backseat dweller and sleeps constantly. We only awaken her for food and potty breaks .(I remember those days, only my parents only woke me if it was absolutely necessary!)

There wasn't always music of choice, but most of the time it adequate enough to entertain me, my passengers, and several other traveling vehicles passing by................. If this were an action photo it may have even entertained you or at least given you a good laugh! Lucky for me its NOT!

Some of us chose an entertaining DVD to zombie out on. Yes, that is a diaper wrapped around the top of her headphones in order to make them fit perfectly, with no sliding, 'cause you can only listen to the howling cats singing the oldies for so long.

Some of us just couldn't take it any more and checked out! Yes, she too has her very own set of headphones altered for a perfect fit thanks to Wah-La! Huggies! You just gotta do whatcha gotta do to make it work!!

The green in the back just past Macey would be our backseat dweller in her usual submerged and horizontal position.

But every now and again our green serpent surfaced..... and found ways to entertain herself and others with trick photography and unusual techniques.

We Made It!

2009-04-09T11:22:00.002-04:00

Yes we did make it to Disney not until Saturday (long story!) This is the first time we have had internet?!?!? And probably really the first time I have had a minute. I forgot my camera cord so I cannot even upload pictures......... :-( YET.

PACKING.........NOT!!

2009-04-02T14:51:00.003-04:00

I haven't even begun packing but I have washed what feels like 1,000 loads of laundry! This wouldn't be so bad except it isn't even laundry that I need to PACK that has had to wait!

It all started this morning when Macey's diaper leaked and her bedding was messy and her room did not have a very good aroma which then managed to spread throughout the house (this is the problem with open floor plans)! I can be thankful that she didn't do an art project like a few of our blogger friend's children as well as one of mine about a year ago! The only way to deal with this is spray, wash, spray some more and open ALL THE WINDOWS turn on ALL THE FANS and spray some more!!!...........so our day began! I figured if I was going to wash Macey's I may as well do Carley's too! I definitely had to do mine since we have someone staying here while we are gone!

But when I took their bedding off I discovered my darling little THINGS.... have stuffed tons of toys and books behind their beds...... so of course I had to clean that out. Now that it is all over the floor instead of hidden behind their beds now I cannot vacuum!

Meanwhile our dogs went out and found something very appealing TO THEM which apparently is all the rave in doggy world so they roll in it.....no I don't want to know what IT was! Now they have to have a bath......... which lead me to realize I have a lot of towels to wash too....

I am beginning to wonder if I am ever going to get to the real laundry and packing list so that we are able to leave on Friday? I guess if I look on the brighter side of things we might actually come back to fresh sheets, a clean house and good smelling dogs! HA..... WHO AM I KIDDING!!

Disney Drudgery!

2009-03-30T14:14:00.006-04:00

I am having trouble getting excited about our trip maybe it's the packing or thoughts of a 11-12 hour drive! Maybe it's because I know that there are a million and two things around here that have been neglected far too long and if we stay we could put a major dent in that list! Maybe it's because the economy is so shaky and the thought of spending money is scary. Maybe it's the girls IEP meetings looming over my head I'll have to face upon return...Hmm..... maybe I won't come back!!!

We took Elliott and Rachel when they were younger and loved it ALL 3 TIMES. I know Carley and Macey will be thrilled and it will be fun to see the joy and amazement in their eyes! Macey gets VERY excited about certain things and especially when she sees or does new things and EVERY ONE around will know it too!(it is absolutely comical!)

OKAY so it is official I'm NUTS!! Who wouldn't be excited! Who wouldn't anticipate this trip,I MEAN REALLY!! Somebody should give me a swift kick in the.....! (I know Kim would like this opportunity!)

I know once we're on the road I will get excited and be fine, Right? Maybe I just need some inspiration to get me going..... So if any of you Dynamic Disney Dudes and Divas have any tips, tricks, must bring, should have, can't miss, don't forget I am all ears!

In the past....
We have never stayed on Disney Properties(maybe one day we will!?!) nor have we gone during Spring Break! We always stay at a timeshare/resort and and have been lucky enough to stay at this particular resort every time! It also happens to be 1 mile from the parks which is nice so if we need a break we can. We always build in days of rest (we learned this after the first year). On our days of rest we hang out at the resort play tennis, putt-putt, lounge at the pool and enjoy some of their activities, games, arts and crafts, etc... One year I remember Rachel and Elliott decided to just hang around outside and catch geckos! okay mostly Elliott caught the lizards and Rachel tagged along. :-)

Shocking Questions!

2009-03-27T10:24:00.011-04:00

Some questions really take me by surprise. One of the questions that I have been asked a couple of times in some form or another is: "Do you ever feel maybe you made a mistake adding to your family? Or, "Maybe you shouldn't have expanded since your other child/children seem to need and want more of your attention?"

I try not to react, even though the question is aimed at children that are here living, breathing and are a part of our family. I wonder if the reason they are asking is simply because they do not understand, or question their own ability to open their homes and/or hearts to accept a child in need? Or could it just be they feel I am not capable? I wonder how they would react if I said, "I bet you're sorry you gave birth to your child 10, 15, 30 years ago?"

However, just like any mother, I do have my moments where I would like to take my children by the foot, drag them to the back yard, throw them in the lake. Or maybe lock them in a closet WITH DUCT TAPE! Yes, sometimes they absolutely drive me mad, exhaust me and take up every bit of my time. I even understood when Elliott's dad jokingly asked if it was too late for an abortion (Elliott then 15 years old) because he was in one of those awful turbulent teenage times.
But those exhausting times are far fewer than the loving and fun times. Our children make us very proud!

I have been known to tell young couples that if they have to get married, go ahead, but don't have children! Try a dog! They are obedient, happy to see you no matter what and no one will arrest you for putting them in a cage!

I can honestly say without hesitation that I do not, nor have I ever felt, that the addition of any of my four children was a mistake! Yes, each child wants my undivided attention at some point in time. Each one of them has wanted me all to themselves. Yes, each of them has fought over who is going to sit with me or with dad next. They even fight among themselves just like all siblings do! There are ups and there are downs. Yes, my personal time is limited (usually nonexistent) and there is never enough time to get everything done. But the years are short and pass by quickly. I will miss these moments and so many more!

And enjoy the chaos..... WE DO!

The Normal Syndrome!

2009-03-26T22:45:00.017-04:00

(My Post Took An Extreme Left Turn From Where I Started?)

I am pretty patient with people who ask questions (yes even when they are not tactful). I have always felt that it is better to be patient and enlighten people than it is to blow up, or become defensive or rude. Sometimes people are just not good at communication (hmm? maybe even me). Most people are just curious,trying to understand DS, what it means, what is involved and how we "cope" (their words). They are most curious about, "Did we know prenatally?" But when you look into their eyes while they're asking, you can almost see the wheels turning as they ask themselves, "What would I have done?"

It saddens me that termination is chosen because of a DS diagnosis. (I wonder if they know they're more than 200 families on a waiting list to adopt a baby with DS?) As much as I want to shake them and say you don't know what you will be missing!! Your child will have an amazing life with lots of potential!! Wouldn't this make me just as one-sided as the doctors? So I can only tell them about our life, but cannot make that decision for them. I do have to distance myself a bit in those circumstances because it REALLY invades "Wendy's World" (balloons, bubbles and buttercups)!

Judgement is meant for the Man upstairs, and sometimes we fail miserably at remembering this. I know I would not want them to judge me or my girls. I do my best not to place judgement on those who make different decisions than I would. At times it is hard, but I try to remember that so many of these families are given outdated information and major pressure to terminate.

I often wonder what would happen if doctors delivered this diagnosis to parents having a typical child?

The Normal Syndrome!

"I'm very sorry, I have the results of the genetic tests and they have confirmed our suspicions that your foetus is what we call...Normal.
Some people prefer the terms "Ordinarily Challenged" or "Normal Syndrome". The syndrome can be easily identified by a complete lack of any interesting genetic characteristics. I know this will come as a shock to you, buy you should be aware of what this is likely to mean.

If your foetus manages to survive the rest of the pregnancy and the birth, which is becoming more common these days, he or she will face some daunting challenges. Children who suffer from normalcy are prone to heatlh and psychological problems. It is almost certain that the growing child will suffer a seemingly endless stream of viruses. They will frequently damage themselves, and sometimes others, from their excessive energy.

Their relentless demands will put a strain on your existing family and, of course, your relationship with your partner will suffer, and possibly end in a painful and acrimonious separation. Any children you already have, even if they also suffer from normalcy, will be jealous of the newcomer and all their extra attention. Many siblings are liable to be psychologically scarred by the new arrival.

I need hardly mention the financial consequences, although disastrous, they will be nothing compared to the emotional turmoil your life will suffer.

After a while, you may be lucky and find they can be kind and loving young children. They may find some temporary happiness in things such as music, dancing, food or playing with toys.
But if they survive early childhood, a Normal child is almost certain to grow into a Normal adolescent. Your years of sacrifice will be thrown back in your face as they become disobedient, wild and reckless. Unable to find happiness and contentment, they will treat you with contempt until they manage to leave home. Even then the suffering will continue as they will often return to try and extract money. They will blame you for their own faults and leave you bitter and twisted.

They may well become criminals, over a quarter of Normals will have trouble with the law, many will spend time in jail. Many will have problems with alcohol or drug abuse. Normal marriages are often unhappy and short and over half end in divorce.

Even if they become successful this is likely to be because of the often observed tendency of Normals towards excessive greed. The chances of them sharing their success with you are remote and they will tend to see you as an embarrassment.

Finally, Normal people are likely to die before their time. 23% will die of cancer, 33% of heart disease. Hundreds every year in this country alone are so distressed by their condition that they take their own life. I'm sorry to say that many will have had a lonely, painful and pointless existence.

I am afraid that Normal Syndrome is a genetic condition that affects every cell of the body, and so is impossible to cure."

By Anon. (In the printed version there's a warning at the top to say that this is intended to make a serious point in an interesting way and is not meant to offend anyone, except possibly a few doctors). Printed From:UK Down's Syndrome Association Newsletter (March 2007).

Happy Aunties!

2009-03-25T10:41:00.011-04:00

All of my children love kids and are very good with them but two of my children REALLY LOVE BABIES!!!

Carley has been infatuated with babies for as long as I can remember. However, she has also hurt a couple of babies. I am not too sure that she did it intentionally. I will say that I did become very alert and guarded whenever there was a baby within 200 feet of us, knowing that Carley had a one track mind.... "I want the baby!" She ended up scratching a little boy at a Christmas party once, but she was trying to scare him like she had seen on "Little Bear".... Another time she wanted to hold a baby, but tried picking her up by the head... luckily we caught her right away!

When we are out, she will spot a baby and tell me how sweet and she wants the baby. (Sometimes they aren't even babies they are toddlers!) We have explained to her that mommies don't like it when you touch their babies, and that she should always ask and only touch their knees or toes... So far that has worked. I have even had a few parents who have handed their babies over to my girl and helped her hold them. I would freak out and say no really that is okay. But they told me to quit worrying, Carley is fine. (but I would watch like a hawk so I could swoop in just in case). However, I will say that she did very well and even impressed me... She has grown into quite a nurturing girl with a gentle touch!

When Macey first came to live with us she didn't really play with toys, just with baby dolls. I noticed she was very rough with them. While pretending to put them to bed she would kind of throw them in, cover them up, sometimes adjust their pillows, then after a moment they might get a pop on the head! When feeding them, she would put their "food" in front of them and then she'd fuss at them.... I was kind of surprised at how rough she was! But, she doesn't really have a gentle touch to begin with, which is why we sometimes call her Brutus. (She has gotten much better this past year.) I started watching her more as she played with the baby dolls and the only thing I can think is that she was doing what she had seen or experienced. I would pretend and say, "Oh no poor baby is crying!" then comfort and cuddle the doll, etc..... She would follow suit, but still eventually it would get popped or fussed at and treated roughly
.

Things change and love does prevail! I noticed one day about 8 to 9 months later that Macey had her baby and was caring her a little differently. She pulled a pillow off the couch laid it on the floor placed the baby gently on the pillow, covered her up, tucked her blanket, then placed a kiss upon her face and spoke sweetly to it! Just as we had done to her!! I noticed that she was showing much more care towards the dolls. She would "read" books, sing, talk nicely, and feed the doll. It filled my heart and made me smile.

When Elliott came to visit last weekend, the girls were in heaven not just because he was home, but he brought Baby Braydon!! (Unfortunately Macey had a cold and wasn't feeling well. She only got to hold him once.) Carley sang a lullaby to him, and then exclaimed, "It Worked!"

There is a new baby in town

2009-03-23T17:33:00.006-04:00

I knew this boy was going to brilliant at 7 days old he knew he wanted to come and meet his family... So Brayden brought his parents and headed for VA

I have got to come up with a name for us and I have decided I am way to young for "Grandma" not to mention we have an abundance of them and not just on my side! We have a Nana, Grandma, Granny, Great Grandma. Rachel and I have been looking at names on the internet(yes they have sites for a list of grandparent names!) So far we like Mia & Pia. I like GiGi (Rachel doesn't) which could give Rob PiPi.. (he he:-) I also like NeNe (NiNi) but not Rachel. SO WHAT IS YOUR NOT GRANDMA NAME?

Today Is The Day!

2009-03-21T10:44:00.002-04:00

Today our family gets to celebrate two special little girls

They have blessed us with their vision and unconditional love

They have taught us that life is full of moments and milestones that shouldn't be taken for granted!

They have lead us into a beautiful world that we may have never seen clearly before.

And in this world we have met so many great friends & families!

Wishes For Wednesday

2009-03-18T06:00:00.006-04:00

If you run into this woman today SMILE BIG and wish her a HAPPY BIRTHDAY!

but if you don't, just pop over to Hannigans and give her your warm wishes!

HAPPY BIRTHDAY FRIEND!

Another wish for today..... That Frontier reaches their goal quickly!

Back when I was working on the adoption paperwork for Macey, I ran across a group called Frontier Horizons . They did mission trips to Ukraine. I really wanted to go on a mission trip with them before I went over there for our adoption. Part of me said, you don't know these people and you're going to travel across the world! You might be lucky to return! But I figured God was in control so why not? However, I am one of his more difficult children, and since God has not invested in Neon signs for me, I decided I better do a little research. This is how I first met Leslie . She just raved about Frontier Horizons and her trip with them. She made a fabulous montage about it here. So we talked for a long time on the phone and I was ready to pack my bags and go right then! I called Vinny from Frontier right after that, and asked if I could go with them. Then I remembered to ask where they were going, could I be involved in their project. I discovered they were going to an area a few hours away from Macey's orphanage. I asked if he thought it would be possible for me to go to Izmail. He told me I could go with him and participate and help with the mission, but I may have to settle for playing with the children (The "hard work" was already planned, assigned and organized down to the littlest detail, and I was coming aboard at the last minute.) He even said that he would send someone with me if I wanted to go to Izmail! Boy was I thrilled and excited!

I then asked Vinny if any mission groups were working in that area. No.He did not believe so. Of course, being the curious person that I am, wondered why? He thought it was because it was so far out in the country that no one had really made it out there. That really hit me hard and saddened a great deal! One of my first thoughts was that not only do these children in the orphanage not have forever families, but how will people learn about them so they can? Because of their location, no one would be helping them! Long story short, I didn't go with Frontier Horizons since our adoption process was much faster than anticipated. We landed in Ukraine for the adoption the same exact week as the mission trip! I sort of understood after going to Izmail what he meant about being out in the country....(goat-pulled carts, chickens in the dirt roads, etc)

One day I hope to be able to go on a mission trip with Frontier, to enjoy Ukraine without the adventure and stress of an adoption. I am not sure why today I decided to visit their site but imagine my surprise and joy to find out that Frontier Horizons is heading to Izmail!

If it won't play click here

Izmail Project from Tarin Wilson on Vimeo.

Timeless Tuesday

2009-03-17T09:00:00.000-04:00

The Little Things In Life

Or Are They?

THE RIGHT ANSWERS ON NEON SIGNS!

2009-03-15T09:00:00.000-04:00

I don't know about the rest of you but I really dislike the type of papers and questions that come with this time of year....... Like we need to meet to sign papers for your child to be retested your 3 year evaluation is due and we have to have it done by THIS TIME (I wonder if the world would explode if we did not actually sign by then... I know not the point) I am still having trouble with the fact that it has been 3 years already let alone anything else.

But the questions still keep flowing: What are you going to do next year... Do you want Carley in the Kindergarten class here? What do you want her to work on? Do you want to go to the transitional Kindergarten? And what about Macey are you going to try and put her back in IPOP (inclusive preschool) or put her in Kindergarten or transition kindergarten? I know you mentioned home school and your concerns about a full day kindergarten program? So are you going to home school part time, not at all, what skills, blah blah blah....... EEEEEEEEEEEEEEEEEEEEK it all makes my head hurt.

I like any parent want what is best for my children. Sometimes I think it would be so nice if there were NEON SIGNS FLASHING THE RIGHT ANSWERS to all of our questions in life. This way you would know what to do next, it would be right no matter what and if it were right than surely the world would be a perfect place and no matter what that right answer was it would fulfill my children, give the best of everything and help them reach their fullest potential!
(K, Beth I will take a huge breath now ;-)

Yes I am a dreamer a very good dreamer! I'm might even be a bit slack or just maybe just down right lazy... I am pretty sure I always look for the easy way out too! But my bad habits probably should go on another post...... Maybe? I am probably the only parent out there has such confidence and not only second guess themselves but 3rd, 4th, millionth and trillion time guessing themselves! (if those are actually numbers or even a sentence!)
Hmm after typing that maybe my neon sign just lit up...... NO, STOP YOU FOOL YOU CANNOT EDUCATE YOUR CHILDREN YOU WILL DOOM!!!!

The overwhelming dilemma of what to do, the worry of messing up, frozen in fear, the guilt, the pressure, thoughts of inadequacy!!!! Then there is the What Ifs.........what if I home school them and fail, miss something, not smart enough, do it wrong, don't make good friends, misses out on socials....... What if I send her to school, they fail, they miss something, they aren't smart enough, they have too many kids, she doesn't get good social times or friends!

Have I said how much I hate this time of year.... How I really dislike trying to figure things out... How I have read the statistics and they all scream Home school better educates... (until I do it then I am sure the numbers will fall DRASTICALLY). That because I am not good at staying on task will we just be a bunch of goof offs in the house who play all day (mmm:-)
How sometimes I feel if I pick a road I can't change my course(this may have something to do with I don't give in well and I hate to lose!) What if I make a decision and stick to it and it was WRONG!

Yes? NO? Maybe? I don't know? Should I? Would I? Could I? Better not? Could you? Should you? Who Knows!

ZUUP!
I think I will just stay right here! Let me know when it's summer or if you find Life's Neon Signs

A New Addition!

2009-03-14T23:55:00.012-04:00

In this corner weighing in at 7 lbs 2oz 21 inches Elliott
(The proud daddy) 1988

In this corner weighing in at 9lbs 1 oz 21 inches long Brayden
2009 (Proud daddy's son)
3o minutes old and already showing his stuff on the net!

Updated Pictures of Brayden

Yes that makes me a Meme, or Oma or something.....
BUT NOT GRANDMA!

Oh Our Mother Is Dismayed!

2009-03-13T21:55:00.010-04:00

The Sun did not shine!

It was too wet to play!

So we stayed in our house on this cold cold wet day!

We did nothing constructive, nothing at all!

My sister and I, we destroyed the whole house!

We started upstairs pulling toys and stuff out!

We threw it all over we threw it about!

We then went downstairs to do more of the same!

Our mother was not happy and shook her head in dismay!

Tell me why it isn't legal to lock Thing 1 and 2 away?

Sometimes mom wishes we would sit and just stay!

Play with one thing and then put it away!

Our mother she longs for those warm sunny days!

So she can throw Me and Thing 2 out to play!

Oh how she hopes that soon the rain will refrain!

Cause here in Virginia it's illegal to restrain!

You can not use a rope, duct tape nor locks!

No it's not legal to stuff us in a box!

My mother is still waiting for THAT Cat With The Hat!

Who should come and clean up this mess with a snap!

If he does not come and whisk our stuff out!

Our mother is surely going to SHOUT!

I know Dr. Seuss is far better at this than I!

Night Time Antics

2009-03-12T22:10:00.011-04:00

I know that we are suppose to let our children do things for themselves to nourish their independence and skills! However sometimes it is just easier to do it yourself. Plus if you do it, you know it's done right. I know... I know... but sometimes you're just supposed to let things go...... OR DO YOU? Maybe you just make them think you did!!

example...... This is mommy's favorite toothbrush (I have one too)
Once you use the Sonicare you will never use a regular brush again! It is a bit pricey but well worth it. (no I do not get any royalties from the company) So we have a "my turn, your turn" deal in our house. First mommy gets to use this tooth brush then they get their own electric brushes to use by themselves!

So far this plan works great.... (Although our cabinets are bursting from toothbrush overload and your friends tend to look at your toiletry bag funny when they stay over night--but Beff is bright and figured it out right away!)

I should mention it also lengthens the process!

HOWEVER I DRAW THE LINE AT "MY TURN, YOUR TURN" SLEEPING ARRANGEMENTS!

We do all the nightly rituals, baths, teeth, story, then into bed, snuggles, kisses, lights out, night light on, doors close, Good Night! Then if there isn't too much left to do, I drop into the recliner to watch a little TV, surf the web and do what I want with no little ones to tend to.......

SO WHY???????

When I go up to bed I find, one little frog curled up on MY SIDE OF THE BED??

So I transport her and her nunu (blanket) too back to her room and as I put her into bed I hear a little voice from beneath all that hair, "I love you momma, you so sweet!"

I love you too, Good night little frog!

Yep, melt, melt, melt just like butter.... then mommy tucks into her bed!

Beginnings To Blossoms

2009-03-11T21:15:00.012-04:00

Q: What should you do when the weather is perfect and Spring is right around the corner?

A: You plant your seeds, so when spring arrives you are ready to plant them outside!

Q: What do you do when you have two little girls who like to help?

A: You give them shovels, dirt, peat pots and seeds!

Q: What do you get when you open a packet of seeds to plant?

A: Two happy and proud little girls planting seeds.

Q: What do you get when you hold one tiny seed in the palm of your hand for them to plant?

A: A fun fine motor practice!

Carley picking up two seeds one for each hand.

Carley dropping them in her peat pot's hole.

Now this little hand happens to belong to Macey, who didn't have any type of pincer grasp and didn't really use her fingers last year. She could only palm things and used her entire hand to pick up things.

Q: What do you get when you see a tiny seed in a perfect pincer grasp in THESE pudgy fingers?
A: A very happy mommy whose heart wells up with joy!

Q: What does this little girl say when she gets the seed?

A: I ga it!

Q: What happens when you drop the seed in the hole?

A: A proud big smile, a loud "I di it!" and applause!

Q: What do you get when you are all done planting your seeds & watering them?

A: Great Beginnings and hopefully some Blossoms. With happy little girls and a little playtime!

Q: Whats gonna work?

A: Team Work! (We might be Wonder Pet Fans!)

3rd post in 3 days!

2009-03-11T09:37:00.010-04:00

Just for Beth who nearly triple dog dared me to make 3 posts in 3 days! (wink wink ) :-)

A couple of weeks ago the youngest of the first batch of Saunders children,

better known as "Middle Child Rachel"

TURNED 18 YEARS OLD!

So hard to believe my little Rachel has turned into such a beautiful young lady in such a short time!

Where does the time go?

It just wouldn't be a true Saunders milestone birthday if you weren't tortured a little bit!! We made her open lots of boxes that contained decorative lights of every color from Ikea with the last box at the bottom of the bag being the gift she has wanted for a long time!

(The true gift just so happened to be the same size as all the other boxes) Bwah ha ha

When she got to this box and pulled the paper back she saw that it was a camera box!

Here Rachel was laughing and said, "I hope you didn't use a camera box to wrap my present that would just be mean"!!

We just laughed and said, "You never know with us Saunders....."

Her reply, "Ain't that the Truth!"

SURPRISE!!! IT IS REALLY THE LONG AWAITED PRESENT!

PS: Beth I told her she was going to have to study up quickly so she could teach you all the camera tips and tricks!

Pondering The Reality of Sanity!

2009-03-10T14:55:00.007-04:00

I admit I have a few Lucy traits and some of you say I am wild and crazy!

But I am a little worried since I am finding some evidence that I might actually be the sane one!

Would I have to question my sanity if I said he reminds me of Shrek?!?!

Feathered Friends

2009-03-09T20:51:00.005-04:00

We thought we were getting some feathered friends for the girls,who are very excited about them but not as much as Roscoe!

It seems that we really got Roscoe pets! He is quite taken with them! He cleans up after them and watches them frequently. If he is in another room and they begin to make noise he comes and checks on them right away!

Who knew two little 3 inch finches could entertain, a dog, two small girls, one big girl, the dad and even the mother! You know what they say......"Great things come in small packages"!

Lollipop Lollipop Licious Little Lollipop

2009-02-11T16:35:00.005-05:00

It is hard to believe that this is Macey's 2nd valentine with us, it feels like she has always been a part of our lives. I remember the first time I had given Macey her first lollipop.... the expression on her face was WOW what is this? It did take me a minute or two to convince her to lick it instead of biting it! As you can see below she has mastered the lollipop technique. However mom is very mean and seldom gives them one since we haven't mastered not being STICKY!! And I really dislike STICKY!

Totally Enjoying Licious Lollipop!

MMMMM! YUMMMMMM!

Who needs valentines if you have a Licious Lollipop!

(unless of course the valentine comes with a lollipop)

A Really CUTE commercial!

2009-02-07T10:44:00.003-05:00

I saw a great commercial over at my friend Beth 's blog featuring her freind Mitzi's daughter Emma from Emma's Gifts.

I don't know if you have every seen the film Emma's Gifts but it is definitely worth seeing. It is a film about differences -- how they matter and how they don’t! Good for families, teachers and anyone in the world of disABILITIES. The film is a great resource for families of children with special needs and educators who seek information about early intervention and building an inclusive classroom setting. (Synopsis here) or watch the (Short Film ).

Oh and here is a little tid-bit of info so you can keep an eye out... Beth and her daughter, Hannah are in the film too! (shhh you didn't hear it from me!)

Cute Commercial Here

OVER GROWN RAT!!

2009-02-03T09:50:00.003-05:00

Okay so I know he isn't really a rat but after his prediction I feel he is no better!!!

Phil's official forecast as read February 2nd, 2009 at sunrise at Gobbler's Knob:

Punxsutawney Phil, Seer of Seers, Prognosticator of all Prognosticators

(you mean RAT OF RATS!)

After casting a joyful eye towards thousands of his faithful followers,Phil proclaimed...........

bright sky above me showed my shadow beside me. So 6 more weeks of winter it will be. (Boo..Hiss...Whine)

For some reason this year winter seems to be a bit more dreary, long and I AM JUST OVER IT!

Sometimes Crazy Out-Weighs The Cold......

2009-01-31T00:44:00.003-05:00

AT LEAST FOR SOME

but not mom who stood at the kitchen window to watch these nuts

FREEZE!!!!

The girls have a bit of cabin fever and are driving me crazy... So I finally decided to let them brave the cold per their request(begging and pleading).

So I bundled them up and sent them to JUMP!!!

Macey tends to be a bit hot natured unlike Carley!

And no I did not take these pictures I sent the teenager out!!!

I WANT SPRING!!!!!

DADDY'S DRIVING SCHOOL!

2009-01-10T20:59:00.012-05:00

mmm........ Dad has noticed there is some interests in the car!!!! (they were scared before)

Daddy is grinning from ear to ear cause they are doing well and LOVING IT!!!

However these will make teaching Macey how to steer a much tougher challenge for daddy. She likes to twist the jeep steering wheel like she does the scooters!!

These scooters are MAGNIFICENT, LOTS OF FUN AND WE SHOULD NOT HAVE WAITED SO LONG TO GET THEM!! They move very easily and glide across the floor just by twisting the steering wheel back and forth. The girls have had a blast on them but then again so have Rachel and I (we hop on from time to time and chase each other).

Bubba Is Home

2008-12-26T14:16:00.002-05:00

Two little girls are very happy that Bubba is home.

I think Bubba might just be as happy to have these two little girls wrapped aroud him!!

I MISSED YOU BUBBA!!

Ho Ho Ho with a little Snap!

2008-12-16T09:31:00.003-05:00

Who Says You Can't Do It All?!?!

2008-11-09T22:52:00.014-05:00

We managed to take this fort apart and bring it home.......... of course it is still waiting to be painted and put back together for the little girls to have endless fun with lots of gross motor exercise! (maybe this will save my house?)

We managed to keep caterpillars alive long enough to watch them hatch into BEAUTIFUL BUTTERFLIES.......... Of course we probably wouldn't have been so successful if we had not gotten them just a week or so before the metamorphosis.......

(good thinking Beth)

Kim and I managed gather some things to make raffle baskets...and made a complete mess in my house, which I am beginning to think I may never get cleaned again!

Meanwhile we had a friend come and stay with us for a few days.....
(What is one more little person amongst so much chaos...especially when she is so cute!)

We even managed to squeak in homecoming.

And of course we had to go to the Pumpkin Patch!

But luckily we did not have to wait for these two nuts to hook up the wagon or plow the field!!!!!
(No, not that guy!--the next picture!)

And let's not forget about the golf tournament we put together on October 31 (yes, Halloween)! It was originally scheduled for Sept 28 but we had major rain. I will say it was a beautiful day and everyone had a great time!

We did have to rush home, pulling into the driveway at 7:00p.m!! We threw our costumes on, rushed to the street so we could begin to trick or treat before it could END!!

Lucky for me Scooby didn't think meeces were good Scooby snacks. I am fortunate enough that they are young enough that going to the end of our street and back is still perfect! I am sure one day they"ll want to do the WHOLE NEIGHBORHOOD.......DAD ALWAYS DOES!!

We went to our ophthalmology appointment about a week ago and are very excited that our new glasses are in!! "Specs4Us" They fit great and it is nice not seeing her glasses on the tip of her nose like Granny!

And yes they are dressed for Sissy's field hockey game....if we dare to wear anything different, everyone wants to know why they are not in their team shirts !

Now We Are Off to watch more field hockey.....

If the team continues the way they have been... then only 3 more games before being State Champs!

AREN'T THEY CUTE?!!

Yes it seems lately that we want our cake and to eat it too!!!!!!!!

But this is what happens when you try and DO IT ALL!!!

What a MONTH!!! Oh Me, who am I trying to kid??

WHAT A YEAR and it isn't even over YET!!!!

Heart, Determination, Passion with a touch of Special!!

2008-11-07T00:04:00.011-05:00

2nd in the DISTRICT

playing for FIRST IN THE REGION

going to

STATE FINALS!

This picture was taken right after they beat Chancellor High School!!

Carley runs across the field after every game right into sissy's arms into the middle of the team!

This is a field hockey team like no other!! I know you think I am partial cause Rachel is on the team and this team has a soft spot for my little girls...........

okay I might be a little partial!

A few years back when these girls began playing on the JV team it was evident that they had something special! They not only play extremely well together but they are a team both off and on the field. Together they have faced the trials and tribulations that only high school can bring as well as one of life's unfair curve balls.

The JV coach made a speech the year they moved up to varsity about how he had never coached a team like this and probably never would again!! He was in awe of how special they were on and off the field. They always worked together and through their differences and disagreements. They are strong, compassionate and supportive of one another. They were truly inspiring when it came to their teammate who battled cancer and in the end lost. They always rallied to raise her spirits, made sure she knew how much she was still a part of them. Even now she is with them in spirit as they wear green in her honor.

These girls have grown into amazing ladies and continue to be inspiring!! Mark my words they are going places and I don't just mean to

STATES!!